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Table 5 PPEET survey respondents by stakeholder group and their project engagement duration

From: Lessons learned in measuring patient engagement in a Canada-wide childhood disability network

Stakeholder Group

Number of respondents n (%)

Project engagement duration

Since the beginning of the project

n (%)

Within the last year

n (%)

Other

n (%)

Researchers

Principal investigator: 10 (23.2)

43 (45.2)

31 (70.5)

7 (15.9)

5 (11.6)

Collaborating investigator: 11 (25.5)

Research assistant: 11 (25.5)

Trainee: 6 (13.69)

Project coordinator: 3 (6.9)

Other: 2 (4.6)

Committee members

Committee member: 20 (80.0)

25 (26.3)

17 (54.8)

6 (19.4)

2 (7.6)

Chair/Vice-chair: 4 (16.0)

Other (e.g. non-voting member: 1 (4.0)

Patient partners on projects

Parent: 13 (76.4)

17 (17.8)

13 (72.2)

3 (16.7)

1 (5.8)

Youth: 3 (17.6)

Other: 1 (5.8)

Patient partners on committee

Parent: 3 (50.0)

6 (6.3)

3 (33.3)

2 (22.2)

1 (16.6)

Youth: 2 (30.0)

Other: 1 (20.0)

National youth advisory panel

 

4 (4.2)

0 (0)

4 (4)

0 (0)

TOTAL

 

95 (100)

64 (67.3)

22 (23.2)

9 (9.4)