From: Lessons learned in measuring patient engagement in a Canada-wide childhood disability network
Stakeholder Group | Number of respondents n (%) | Project engagement duration | |||
---|---|---|---|---|---|
Since the beginning of the project n (%) | Within the last year n (%) | Other n (%) | |||
Researchers | Principal investigator: 10 (23.2) | 43 (45.2) | 31 (70.5) | 7 (15.9) | 5 (11.6) |
Collaborating investigator: 11 (25.5) | |||||
Research assistant: 11 (25.5) | |||||
Trainee: 6 (13.69) | |||||
Project coordinator: 3 (6.9) | |||||
Other: 2 (4.6) | |||||
Committee members | Committee member: 20 (80.0) | 25 (26.3) | 17 (54.8) | 6 (19.4) | 2 (7.6) |
Chair/Vice-chair: 4 (16.0) | |||||
Other (e.g. non-voting member: 1 (4.0) | |||||
Patient partners on projects | Parent: 13 (76.4) | 17 (17.8) | 13 (72.2) | 3 (16.7) | 1 (5.8) |
Youth: 3 (17.6) | |||||
Other: 1 (5.8) | |||||
Patient partners on committee | Parent: 3 (50.0) | 6 (6.3) | 3 (33.3) | 2 (22.2) | 1 (16.6) |
Youth: 2 (30.0) | |||||
Other: 1 (20.0) | |||||
National youth advisory panel | 4 (4.2) | 0 (0) | 4 (4) | 0 (0) | |
TOTAL | 95 (100) | 64 (67.3) | 22 (23.2) | 9 (9.4) |