Skip to main content

Finding connection “while everything is going to crap”: experiences in Recovery Colleges during the COVID-19 pandemic

Abstract

Background

Recovery Colleges (RCs) are mental health and well-being education centres where people come together and learn skills that support their wellness. Co-production, co-learning and transformative education are fundamental to RCs. People with lived experience are recognized as experts who partner with health professionals in the design and actualization of educational programming. The pandemic has changed how RCs operate by necessitating a shift from in-person to virtual offerings. Given the relational ethos of RCs, it is important to explore how the experiences of RC members and communities were impacted during this time. To date, there has been limited scholarship on this topic.

Methods

In this exploratory phase of a larger project, we used participatory action research to interview people who were accessing, volunteering and/or working in RCs across Canada. Semi-structured interviews were conducted with twenty-nine individuals who provided insights on what is important to them about RC programming.

Results

Our study was conducted amid the COVID-19 pandemic. Accordingly, participants elucidated how their involvement in RCs was impacted by pandemic related restrictions. The results of this study demonstrate that RC programming is most effective when it: (1) is inclusive; (2) has a “good vibe”; and (3) equips people to live a fuller life.

Conclusions

The pandemic, despite its challenges, has yielded insights into a possible evolution of the RC model that transcends the pandemic-context. In a time of great uncertainty, RCs served as safe spaces where people could redefine, pursue, maintain or recover wellness on their own terms.

Plain English summary

AbstractSection Background

Recovery Colleges (RCs) are mental health and well-being education centres where people come together and learn skills that support their personal recovery journeys.

AbstractSection What did we want to know? What approach did we take?

In this phase of a larger project, we used a participatory action research approach to interview people who were accessing, volunteering and/or working in RCs across Canada. This research approach draws on the knowledge of all researchers and participants and places equal value on personal and professional experiences. Therefore, this study was created and shaped by, with, and for people who participate in RCs in partnership with academic researchers.

AbstractSection What Did We Do?

Twenty-nine individuals shared what is important to them about RC programming. Our study took place during the COVID-19 pandemic during the pandemic-related restrictions such as social distancing.

AbstractSection What did we learn?

The results of this study demonstrate that RC programming is most effective when it: (1) is inclusive; (2) has a “good vibe”; and (3) equips people to live a fuller life. The pandemic, despite its challenges, could inform an evolution of the RC model that lasts beyond the pandemic.

Peer Review reports

Introduction

Personal recovery is a nonlinear process of living a purposeful and meaningful life despite mental distress, challenges and adversity [1, 2]. Key components of personal recovery include connection, hope, a positive sense of identity, meaning and purpose [3]. In recent years, personal recovery-oriented practice has become mandated as a standard of mental health care in many countries [4]. Accordingly, drawing on their successful implementation in the United Kingdom, Recovery Colleges (RCs) have rapidly expanded to more countries, including Canada, to provide holistic approaches to support personal recovery [5]. RCs are mental health and well-being education centres where people come together and learn skills in support of their personal recovery journeys. RCs operate on an adult education model and host courses on a variety of topics including (but not limited to) understanding mental health and treatment options, vocational skills, life skills and recreation [6]. Those accessing RCs refer themselves to the program and select the courses that they feel are most aligned with their interests and needs. Offerings vary from 1-hour workshops to 10 weekly 2-hour sessions, with the majority of courses being two to 3-hour weekly sessions over 4 to 6 weeks. Central to the RC philosophy are the concepts of peer support, co-production and co-learning. In co-production, people accessing RCs are recognized and situated as experts who collaborate with people providing services to design, facilitate and actualize all components of the RC (e.g., course calendars, curriculum, logistics, course facilitation, strategic directions, governance) [7, 8]. By placing lived expertise on par with professional expertise, RCs open space to deconstruct hierarchical power structures, with members coming together to form a collaborative learning community [9, 10].

The purpose of RCs is to bolster personal recovery through a supportive and inclusive community. However, the restrictions placed on social gatherings during the pandemic posed challenges in meeting these goals and raised questions about the future of RC programming given in-person offerings were suspended. Research found that containment strategies, such as social distancing, contributed to an increase in anxiety, depression and mental distress [11]. Given the negative impact of the pandemic on mental health, personal recovery-oriented programming has become even more important [12].

The pandemic has changed how RCs operate by necessitating a shift from in-person to virtual offerings [13]. Given the relational ethos of RCs, it is important to explore how the experiences of RC members and communities were impacted during this time. To date, there has been limited scholarship on this topic. In this co-produced research project, we conducted interviews with people accessing, volunteering and/or working in RCs to understand what is important to them about RC programming. Because the study took place in the midst of the pandemic, an unexpected result was that it garnered insight into the impact of the pandemic on participants’ experiences. As COVID-19 related restrictions ease globally, RCs have adopted a variety of course delivery methods including hybrid, in-person and virtual. It is imperative that we critically reflect on the lessons learned through the pandemic and consider their applicability beyond this context.

Terminology

To avoid stigmatizing language, which perpetuates damaging stereotypes, we have chosen terms that demonstrate our commitment to equity, diversity, inclusion and anti-discrimination. Consistent with language used by study participants and with the inclusive philosophy of the RC movement, we use action-oriented and person-first language throughout this paper (e.g., people accessing RCs).

Methods

Design

This qualitative exploratory study was part of a larger research project comprising two simultaneous phases that explored RC evaluation. The first phase involved the co-creation of a scoping review that examined how RCs were evaluated and whether they were co-produced with people accessing RCs [14, 15]. The second phase involved interviewing people who access, volunteer and/or work in RCs to explore two questions: (1) What do participants understand to be the most important elements of RCs for their personal recovery? and (2) How do we create evaluation measures that are relevant and impactful to people accessing RCs? This article focuses on the first question, with the latter covered separately [15]. While the impact of the pandemic was originally not a focus of our study, the timing of our interviews yielded rich information about how COVID-19 affected the experiences of people involved in Canadian RCs and what participants considered to be the key factors for supporting their personal recovery within the confines of the pandemic, and beyond.

We believe that co-producing research with members of the community of focus is necessary for ethical research and essential in promoting equity and inclusion. As such, the study used a participatory action research (PAR) methodology to engage people who attend or facilitate RCs, researchers and administrators as co-authors and co-investigators [14, 16]. PAR involves an iterative process of reflection, data collection and action to improve health, reduce health inequities and decentralize traditional research by involving those most affected [17, 18]. Underpinning PAR are principles of power sharing, leveraging strengths, empowerment, and honouring diverse perspectives and forms of knowledge [19]. It consists of three core elements: (1) active participation of researchers, knowledge users and study participants in the co-construction of knowledge; (2) promotion of self- and critical awareness and reflexivity leading to individual, collective or social change; and (3) building partnerships between researchers and knowledge users in all stages of research [18]. Consistent with the principles of PAR, we have included positionality statements from each author and invite readers to consider the perspectives represented, how they influenced the writing of this manuscript, as well as the voices that are missing (Table 1).

Table 1 Study authors’ positionality statements

Study participants and recruitment

Recruitment was facilitated by administrative personnel at six RC sites across Canada. A study information letter was circulated directing interested participants to contact the research analyst (GB) or a trainee. Table 2 lists inclusion and exclusion criteria. The consent process took place remotely via telephone or Webex (video conferencing software) [20].

Table 2 Inclusion and exclusion criteria

Data collection

Consistent with PAR values, the qualitative interview guide (see Additional file 1) was designed to empower participants to share perspectives and experiences in their own words and contribute to the co-construction of knowledge between participant and interviewer [21]. Co-constructing knowledge entails iteratively building shared understanding and meaning with research participants [22]. Twenty-nine semi-structured interviews were conducted via Webex or telephone with people who access (n = 25), volunteer and/or work (n = 9) at Canadian RCs between December 2021 and June 2022. It is important to note that several participants held multiple roles in connection with RCs. Interviews were conducted by GB or a trainee and lasted approximately 60 min. Interviews involved open-ended questions related to participants’ involvement with RCs, perceived key program features, RC evaluation methods and suggestions for improved evaluation techniques. Participants received a $20 honorarium in the form of a gift card. All interviews were audio-recorded, transcribed and de-identified.

Data analysis

Our team adopted an inductive approach to thematic analysis [23]. Data were analyzed iteratively and collaboratively as a team. Initially, team members independently coded two transcripts and met to compare findings and discuss thoughts and reflections. The codebook was then co-designed by incorporating feedback from all authors. Once consensus was achieved, the codebook was uploaded into Dedoose 9.0.46 software [24], where the team double-coded one additional transcript to establish interrater agreement. Researchers (HH, RS, GB, AD, GBel, JR, SG) coded another two or three transcripts each, implementing the reflexive practice of memoing to document emerging impressions and relationships within the data [25], which the coders then explored at weekly meetings. RS completed the initial coding of the remaining transcripts. Next, SS led the team in an iterative process in which codes and memos were grouped into high-level descriptive categories with example quotations from the transcripts. After ensuring that categories were inclusive and reflective of the entire data set, the team collectively refined categories into three central themes: (1) facilitating inclusion; (2) creating a “good vibe”; and (3) living a fuller life.

Results

Theme 1: facilitating inclusion

A central tenet of the RC philosophy involves offering inclusive and low-barrier access to wellness education. When participants described the notion of facilitating inclusion, the majority were referring to three related concepts: (1) physical dimensions of accessibility; (2) low financial barriers; and (3) “being with.”

Physical dimensions of accessibility

Due to the need for social distancing during the pandemic, RCs shifted from in-person offerings to video conferencing platforms. The majority of participants described how changes in physical aspects of RCs affected their experience of attending courses from an accessibility perspective. Some participants emphasized the importance of offering a virtual meeting space at a time when it was difficult to access their usual social networks:

P003: The pandemic happened, and even the connections I did have were kind of broken because I couldn’t meet anybody [...] So having these regular [RC] sessions where I was seeing the same people again and again and discussing the difficulties they were having in their lives really helped me feel less like there was no support system around me at all.

P011: Because it’s during COVID, [the RC] is like a life changer. You finally have something to do, and support your mental health, while everything is going to crap.

Many participants described how virtual courses facilitated accessibility, particularly in terms of managing social anxiety, reducing commute times and enabling attendees to balance personal obligations:

P008: A year ago, I was struggling with social anxiety. I really didn’t like going outside, seeing anybody. I was kind of stuck in the house. So, a lot of times I would hide myself behind the camera. After a while it was like, you know what, I don’t need to do this anymore. I’m safe in my house. So I opened up the camera [...] I was very comfortable.

Some participants spoke about the ability of virtual courses to broaden the reach of RCs:

P004: It has opened it up to a lot more people, and it has made it so people who maybe are anxious about joining a class can come on and have their camera off if they need to and still feel comfortable to be there. They can communicate through the chat.

However, one participant highlighted how virtual RC attendance is not accessible for people without internet access:

P018: Until recently, I didn’t have the internet or a device with a webcam on it to allow me to attend. I finally acquired said items, and now I’m able to attend.

Several participants also described how social connections were hindered when physical accessibility to programs was stopped or limited during the pandemic. In contrast to in-person RC offerings, virtual platforms make it more difficult to read and respond to visual social cues:

P026: But the in-person class, I feel that we have better communication. We can see each other’s gestures. We can connect with each other and other students.

Low financial barriers

Several participants described how free courses are a key component of RC accessibility and inclusivity. One participant explained that compared with other, often cost-prohibitive, mental health services, free RC courses gave them a more comfortable environment in which to communicate their thoughts and feelings:

P027: In an RC situation, we can talk for an hour. In a psychiatrist’s office, 15 minutes costs $1000 [...] You don’t express yourself. You don’t say what you want to say because these people are professionals. They will label you.

Other participants described virtual courses as an additional factor in reducing financial barriers:

P018: Because of my financial situation, I cannot afford transportation to X and back [...] Being able to do it online allows me to attend like normal, and it allows me to learn just like any other student.

P021: It’s convenient. I don’t have to go anywhere, which is good because gas is through the roof [...] With my kid too [...] I didn’t have to worry about having to get someone to look after her.

Being with

Several participants described being supported by and “being with” other RC members as experiences where they felt a profound sense of belonging. Specifically, several participants described the notion of “being with” as key to dismantling traditional teacher/student hierarchies:

P007: [T]he facilitators make you comfortable very quickly. They encourage you to participate. But again, there’s no pressure.

P024: They’re there by choice. They’re members in a collaborative relationship of recovery. Not students. We’re not teachers [...] I myself am not comfortable with the word “student.” I believe that creates a power dynamic [...] I’m asking you to share with me. I’m thanking you for it. You’re teaching me. That’s collaborative.

Participants also described how the people facilitating courses lay the foundation for inclusive, respectful and supportive group dynamics:

P018: [Facilitators] really understand me and what I’ve been through and what I’m currently going through. They make life more comfortable. They’re sort of somewhere between your best friend and family.

Participants repeatedly described how their peers’ empathetic attitudes contributed to the centrality of supportive connection in both their RC experiences and their individual processes of personal recovery:

P005: The participants were also very engaging, as well, and very supportive of each other. It’s like building a friendship or a trust. It takes time where you feel that it’s okay to talk about certain things [...] There’s no judgement. There’s acceptance.

Participants also benefited from an environment that responded to and supported their unique needs:

P022: The format is nicer to learn things in than a traditional class because you know that people [...] are understanding and accommodating with any kind of mental health or learning issue.

P029: I’m very happy that X has an RC; particularly, they have activities where people are allowed to speak their mother tongue.

Theme 2: creating a “good vibe”

Several participants used the term “vibe” to describe the feeling or mood that was set by the people facilitating and other people participating in the RC. When participants described the vibe, the majority were referring to three related dimensions: (1) atmosphere; (2) attitude/approach; and (3) a sense of shared humanity in knowing that they were not alone.

Atmosphere

Several participants described how, despite not being able to meet in person, they still felt the “group vibe” over video conferencing. Although initially some participants worried that a virtual environment might make sharing their thoughts uncomfortable, these fears were not realized. Much of the ease of creating a story-sharing atmosphere was attributed to the people facilitating RC courses:

P026: The courses were virtual, but we can feel the positivity out of the computer when I see them [facilitators]. The way they explain the skills and information was so good and effective.

P021: I thought it would be uncomfortable [...] and I wouldn’t want to tell my stories. It wasn’t like that. The facilitators were very welcoming, very inviting and approachable online.

Those facilitating often shared their lived experience as a way to create an atmosphere conducive to open discussion and to deepen understanding of a particular topic. As this participant who is involved in RC facilitation explains:

P015: I think that when somebody leading the session can let their guard down and really open up as far as their lived experience and the things they have been through, you feel the energy in the room and the vibe in the room kind of settle down a bit. It feels good [...] I think when we’re able to share our stories it can make conversation much more valuable [...] It’s just about an energy and a vibe.

Because those facilitating courses created a “good vibe,” many participants described feeling at ease and relieved knowing that the atmosphere created would set the tone for others to act in an emotionally supportive manner. As this participant describes:

P005: It’s listening to people, and people listening to each other, and having the confidence and the support knowing that you can’t really say anything wrong. No one there is going to jump down your throat. It’s a support system.

Attitude/approach

Participants also described how the educational approach of the people facilitating promoted a supportive environment:

P026: I think it is more than the information [...] It’s the way they represent it for us. Because it’s important how we connect with them, how we feel about the information [...] But as a personal experience, I feel the difference between the way they represent this information.

Many participants described a strong sense of connection to other group members and a genuine desire to help one another during times of struggle:

P008: If somebody is having a bad day, immediately everybody starts typing, sending out hugs, sending out love, sending good vibes. It’s just such a nice feeling to have those people.

Sense of shared humanity

Participants described at length how the pandemic and mental distress were isolating experiences. The RC courses offered an opportunity to connect with other people. The majority of participants used words like “friendship,” “trust,” “non-judgmental” and “acceptance” to describe how they felt supported and engaged:

P012: What I really like about the RC is the community that we have. You can go to a group, and you know that people aren’t going to judge you because you’re living with mental illness.

P014: It’s really nice to connect with people who are going through similar issues [and] it came at a key time, because with the pandemic I’ve been feeling a lack of connection like many people. And it was just really good to talk, and just be in that environment.

Due to societal stigma associated with mental distress, for some participants, the RC was the only safe place in which they could come together and share their stories with people who understood them. When those facilitating opened the door to sharing stories, it created a trusting environment and let participants know that they were not alone.

P004: I find opening up and telling people [my story] [...] I see such a difference in how they open up. My story doesn’t have a happy ending. My story isn’t a good story. But I just see such a difference when people [...] It’s like all of a sudden they can trust me [...] they can relate to me. I see a light come on for them [...] they’re not alone.

Some participants thought that longer courses would help to build relationships. They described the RC as a supportive atmosphere, but explained that it took time to get used to the environment and to the program structure. Initially, course topics or the course structure could be triggering and “a bit uncomfortable,” but once participants “embraced the community,” it was a great experience.

P005: There’s a certain amount of trust, safety, etc. before you feel that you can open up. If it takes a couple of weeks, then you are kind of just starting to be a little bit more participatory, and then it’s like, “Oh well, it’s over.” Then you have to start building that relationship again with another group.

In addition, participants described how they can “feel the positive vibes” when they engage in RC programming. The trusting atmosphere and non-judgmental attitude and approach demonstrated by those accessing and facilitating created an affirming space that enabled participants to share experiences and that promoted a sense of belonging to a community:

P025: I really like how the RCs gave that freedom of “come as you are.”

P008: What I’ve enjoyed the most is the feeling of being in a community with other people who know what I’m going through. I like the fact that we support each other so well [...] I think it has a lot to do with the peer support specialists. They give off this vibe. They make you feel so welcome.

Theme 3: Living a fuller life

When participants described the notion of what it means to live a fuller life, the majority were referring to three related dimensions: (1) having an opportunity to flourish; (2) learning with like-minded peers; and (3) living the change. Although this theme is not pandemic specific, it is important to highlight that RCs created spaces for people to work through challenges in pursuit of their goals at a time when many opportunities were limited due to pandemic restrictions.

Having an opportunity to flourish

Participants described the RC as a place that provided space to flourish. The supportive environment created in the RC showed participants a path toward (re) gaining a purpose in life:

P006: You are creating an environment where recovery and flourishing can take place. So the RC offers a different kind of environment. You’re creating an environment for people to achieve and to move forward. You can move towards your hopes and your dreams.

For many, the RC was a safe place to understand and process feelings such as anxiety, grief and suicidal ideation. Several participants credited participation in an RC as the reason they’re alive today. They were also clear that they felt this way because the RC was not a place for treatment or therapy. Therapy was important, but the clinical environment was distinctly and importantly different from RCs. For participants, the RC was more about learning how to live a fuller life:

P019: I think for some people they still need to do therapy or see a psychiatrist or do whatever. But there are a lot of people that are living a life that is not full. I think if they were to take part in some things like this [RC], they would kind of transform into a phoenix. They’d be able to fly and feel good about things again. I can’t really put into words how much my life has changed because I felt like I was nothing, and now I feel like somebody. I feel important.

Learning with “like-minded” peers

Some participants depicted the RCs’ peer-to-peer support of “like-minded” individuals as an important alternative to the traditional power dynamics that exist in mental health services. RCs provided a context for exploring individual autonomy:

P024: The clinicians, the doctors, the researchers, the methodologists, they see no problem with acronyms and certain words. But they alienate and stigmatize the marginalized populations. Period. That’s why there’s so much power and credit to things like peer support and RC. It’s like-minded individuals with lived experiences. The chances of a positive result, by inserting hope through the credibility of someone who has been there, is when you avoid as many of these stigmatic words as possible. The verbiage is very, very important. We’re not our diagnoses. We’re not students. We’re people who happen to teach and share with each other.

For some participants, the notion of living a fuller life included learning from, with and about fellow peers:

P012: I have found new ways to cope and maintain my recovery from both the instructors and also other group members. So, I have more tools in my recovery toolbox than I did when I ended up at the clinic.

Participants spoke at length about the importance of being around “like-minded” people and its contributions to learning:

P005: I found the women’s group, or the peer discussion, very beneficial as well. Because at the time, with COVID and things [...] there is not a lot of contact with people. Especially with like-minded people.

P021: Although we were from different walks of life, we all shared the same issue, I guess. We were all there for the same reason. It was very positive and comfortable, so that is why I kept with it.

Several participants described how learning was multi-directional:

P015: Throughout the session, it is generally about stimulating discussion and stimulating learnings, both on their end [participants] and even our end [facilitators]. That is kind of what I love about the RC format—the idea that we’re all learning from each other, at the end of the day.

Living the change

RCs were seen as places where participants could engage in their recovery by transferring learned skills into everyday life. For example, during moments of crisis:

P018: It [RC] has allowed me to control all of that and realize life isn’t the catastrophe I anticipate it’s going to be. Take a step back, take a deep breath, do some relaxation exercises, come back, and look at my situation. The RC has given me step-by-step instructions on how to handle myself in those situations.

Participants described the educational opportunity of personalizing their involvement as a critically important aspect of autonomy through self-guided learning, self-assessment and personal growth:

P001: They would send you the handout for the week, and you could review them. Just looking at your progress as well, through your own account.

This participant shared how they took what they learned to “live the change”:

P013: I’m making my own [notes and slide shows] to make [the content] more real, and I can put them in a binder or on my bulletin board. So, I can really actually live it. I can live the change.

Discussion

Given the ongoing impact of the COVID-19 pandemic, it is important to understand how changes to programming affect the experiences of people involved with RCs. Our study showed that RC programming is most impactful when it is inclusive, creates a “good vibe” and equips people to live a fuller life. The shift to providing virtual opportunities has ushered in a new and evolved RC model.

While the transition to online offerings ensured continuity of programming during the pandemic, the unique benefits of online courses seem to stretch beyond that context. As participants described, online offerings facilitate inclusion for people who are uncomfortable with in-person environments, live remotely, have burdensome transportation costs or have domestic responsibilities. However, participants also missed certain aspects of in-person RCs, such as opportunities for meaningful connection and accessibility for those without digital access. These findings suggest an appetite for a hybrid model that allows people to engage with RCs in different ways. This approach is consistent with the RC philosophy of maximizing opportunities for choice and honoring the right to self-determination. Overall, the pandemic and associated changes have yielded insights into how RCs can broaden their reach and deepen their commitment to accessibility beyond the pandemic context.

Despite some initial reservations about transitioning from an in-person to a virtual format, several participants described how video conferencing was able to maintain the “group vibe.” They noted that those facilitating were key to creating an atmosphere, attitude, approach and closeness conducive to sharing stories in a virtual space. This observation illustrates the importance of digital compassion [26]. Digital compassion is the ability to remain present and responsive to the needs of others in a virtual environment. Compassionate communication involves reading and responding to visual social and emotional cues that often do not translate digitally. This means that flexibility and creativity are required to demonstrate compassion in a virtual environment. Compassion is central to the personal recovery phenomenon and finding ways to foster compassion in a virtual environment is essential to the RC model [27].

RCs are transformational spaces that support people in reimagining possibilities for their future and for living fuller lives. In a time of great uncertainty, RCs served as safe spaces where people could redefine, pursue, maintain or recover wellness on their own terms. Consistent with the personal recovery philosophy, participants noted that RCs helped them pursue and realize their purpose and potential. With the increased stressors and prevalence of mental distress that the pandemic generated [12], people accessing RCs had opportunities to gain skills to help them be resilient and flourish in the face of challenges and adversity. Ultimately, RCs offered space for people to work toward and achieve their goals in a time of great uncertainty.

Limitations

Our original interview questions were not designed to seek information about participants’ pandemic-related experiences. The questions were broad and designed to elicit participants’ experiences in RCs in general. Participants related their experience with RCs during the pandemic organically and in conjunction with the researcher as the interviews progressed. Additionally, we did not collect nuanced demographic data because it is challenging to collect this type of data when the purpose of the interview is to build rapport and ask open-ended questions. Although collecting demographic data is not required in qualitative research, we recognize that collecting this information could have been useful in describing our sample. Finally, study participation was limited to people who could participate virtually given geographical barriers and physical distancing restrictions. People with no means to access technology or without the comfort and full ability to use technology were likely unable to participate in our study.

Conclusion

This study elucidates how the imposed changes to RC operations during the pandemic can promote an evolution of the RC philosophy to further the reach and impact of programming on the personal recovery journeys of those who access RCs. The pandemic demonstrated that the RC model and RC communities are adaptable and resilient in the face of adversity. The insights gathered through our interviews can be used to inform quality improvement initiatives and processes to further prioritize the outcomes that are most important to RC community members.

In light of the current findings, future community-engaged research should examine how to evaluate and subsequently bolster the aspects of RCs that people accessing, volunteering and/or working at RCs have deemed to be most important in a way that they consider relevant and impactful. RCs should also consider how to leverage insights from the pandemic to deepen their commitment to inclusion and impact by offering multiple means of engaging with RCs. Future research could explore the impact of hybrid RC offerings and how virtual technology might shape and influence recovery-oriented educational initiatives within RCs. Given how essential compassion is in recovery-oriented practice and education, it is important to explore opportunities for training those facilitating in RCs in the unique competencies they need to practice digital compassion, such as communication skills, self-reflection and reflexivity [26]–[28]. In conclusion, the pandemic has offered unique insights into how the RC model can evolve to best reflect the things that matter to the people most closely affected by the programming.

Availability of data and materials

Aggregate de-identified data is available upon request from the lead author.

Abbreviations

RC:

Recovery College

PAR:

Participatory action research

References

  1. Anthony WA. Recovery from mental illness: the guiding vision of the mental health service system in the 1990s. Psychosoc Rehabil J. 1993;16:11–23.

    Google Scholar 

  2. Slade M. Mental illness and well-being: the central importance of positive psychology and recovery approaches. BMC Health Serv Res. 2010;10:26.

    Article  PubMed  PubMed Central  Google Scholar 

  3. Leamy M, Bird V, Le Boutillier C, Williams J, Slade M. Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry. 2011;199:445–52.

    Article  PubMed  Google Scholar 

  4. Whitley R. Introducing recovery. Can J Psychiatry. 2014;59:233–5.

    Article  PubMed  PubMed Central  Google Scholar 

  5. Perkins R, Repper J, Rinaldi M, Brown H 1. Recovery colleges. [Implementing recovery through organisational change project]. https://imroc.org/wp-content/uploads/2022/04/1.Recovery-Colleges.pdf. 2012; Accessed 11 Apr 2023.

  6. Perkins R, Meddings S, Williams S, Repper J, 15. Recovery colleges 10 years on. In: ImROC - implementing recovery through organisational change. https://imroc.org/resource/15-recovery-colleges-10-years-on/. 2018 Accessed 12 Aug 2023.

  7. Durbin A, Nisenbaum R, Wang R, Hwang SW, Kozloff N, Stergiopoulos V. Recovery education for adults transitioning from homelessness: a longitudinal outcome evaluation. Front Psychiatry. 2021;12:763396.

    Article  PubMed  PubMed Central  Google Scholar 

  8. Sommer J, Gill KH, Stein-Parbury J, Cronin P, Katsifis V. The role of recovery colleges in supporting personal goal achievement. Psychiatr Rehabil J. 2019;42:394–400.

    Article  PubMed  Google Scholar 

  9. Avelino F. Theories of power and social change. Power contestations and their implications for research on social change and innovation. J Politic Power. 2021;14:425–48.

    Article  Google Scholar 

  10. Cameron J, Hart A, Brooker S, Neale P, Reardon M. Collaboration in the design and delivery of a mental health recovery college course: experiences of students and tutors. J Ment Health. 2018;27:374–81.

    Article  PubMed  Google Scholar 

  11. Wiljer D, Charow R, Costin H, Sequeira L, Anderson M, Strudwick G, et al. Defining compassion in the digital health age: protocol for a scoping review. BMJ Open. 2019;9(2):e026338.

    Article  PubMed  PubMed Central  Google Scholar 

  12. Statistics Canada. Survey on COVID-19 and mental health, Feb to May 2021. https://www150.statcan.gc.ca/n1/daily-quotidien/210927/dq210927a-eng.htm. 2021 Accessed 11 Apr 2023

  13. Arbour S, Harris H. Empowerment in the time of uncertainty. J Rec Mental Health. 2022;5:1–4.

    Article  Google Scholar 

  14. Lin E, Harris H, Black G, et al. Evaluating recovery colleges: a co-created scoping review. J Ment Health. 2022;32:1–22.

    CAS  Google Scholar 

  15. Soklaridis S, Shier R, Black G, Bellissimo G, Anna DG, Gruszecki S, Lin E, Rovet J, Harris H. “My words matter”: perspectives on evaluation from people who access and work in recovery colleges. Ment Health Soc Incl. 2023. https://doi.org/10.1108/MHSI-01-2023-0002.

    Article  Google Scholar 

  16. Baum F, MacDougall C, Smith D. Participatory action research. J Epidemiol Commun Health. 2006;60:854–7.

    Article  Google Scholar 

  17. Marshall C, Rossman GB. Designing qualitative research. Thousands Oaks, Calif: Sage Publications; 2006.

    Google Scholar 

  18. McIntyre A. Participatory action. Research. 2014. https://doi.org/10.4135/9781483385679.

    Article  Google Scholar 

  19. Kindon S, Pain R, Kesby M. Participatory action research. In: Kitchin R, Thrift N, editors. International encyclopedia of human geography. Oxford: Elsevier; 2009. p. 90–5.

    Chapter  Google Scholar 

  20. Webex. Webex by Cisco. In: Webex. https://www.webex.com. 2023; Accessed 11 Apr 2023.

  21. Littman DM, Bender K, Mollica M, Erangey J, Lucas T, Marvin C. Making power explicit: using values and power mapping to guide power-diverse participatory action research processes. J Commun Psychol. 2021;49:266–82.

    Article  Google Scholar 

  22. Pratt B. Engagement as co-constructing knowledge: a moral necessity in public health research. Bioethics. 2019. https://doi.org/10.1111/bioe.12591.

    Article  PubMed  Google Scholar 

  23. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.

    Article  Google Scholar 

  24. Dedoose. Accessed Apr 18, 2023. https://www.dedoose.com.Dedoose.

  25. Cutcliffe JR. Methodological issues in grounded theory. J Adv Nurs. 2000;31:1476–84.

    Article  CAS  PubMed  Google Scholar 

  26. Wiljer D, Charow R, Costin H, Sequeira L, Anderson M, Strudwick G, Tripp T, Crawford A. Defining compassion in the digital health age: protocol for a scoping review. BMJ Open. 2019;9:e026338.

    Article  PubMed  PubMed Central  Google Scholar 

  27. Spandler H, Stickley T. No hope without compassion: the importance of compassion in recovery-focused mental health services. J Ment Health. 2011;20:555–66.

    Article  PubMed  Google Scholar 

  28. Terry C, Cain J. The emerging issue of digital empathy. Am J Pharm Educ. 2016;80:58.

    Article  PubMed  PubMed Central  Google Scholar 

Download references

Acknowledgements

The support and contributions of Sanjeev Sockalingam, Hema Zbogar and Kenya A. Costa-Dookhan are gratefully acknowledged.

Funding

This work was supported by the Canadian Institutes of Health Research under SPOR Catalyst Grant [# 424837].

Author information

Authors and Affiliations

Authors

Contributions

HH: Conceptualization, Methodology, Validation, Formal Analysis, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization, Supervision, Project Administration. RS: Methodology, Validation, Formal Analysis, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization. GB: Methodology, Validation, Formal Analysis, Investigation, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization. ADG: Methodology, Validation, Formal Analysis, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization. EL: Conceptualization, Writing—Review & Editing. GB: Methodology, Validation, Formal Analysis, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization. JR: Methodology, Validation, Formal Analysis, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization. SG: Conceptualization, Methodology, Validation, Formal Analysis, Data Curation, Writing—Original Draft, Writing—Review & Editing, Visualization. SS: Conceptualization, Methodology, Validation, Formal Analysis, Data Curation, Resources, Writing—Original Draft, Writing—Review & Editing, Visualization, Supervision, Project Administration, Funding Acquisition.

Author information

The authors of this paper are researchers, scientists, coordinators and people with lived experience who all have some affiliation with an RC. We do not and cannot claim to be objective. We recognize that our experiences and perspectives shape how we interpret and present findings (see Table 2). Our intersectional experiences are embedded in the research process and we invite readers to consider the perspectives we write from, the privileges and power we hold, and the voices that have been left out.

Corresponding author

Correspondence to Holly Harris.

Ethics declarations

Ethics approval and consent to participate

Research Ethics Board approval was obtained from the Centre for Addiction and Mental Health (042/2020) and Ontario Shores Centre for Mental Health Sciences (20–013-B). Explicit written informed consent was obtained from all study participants prior to engaging in the study.

Consent for publication

Not applicable.

Competing interests

The authors declare no competing interests.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Supplementary Information

Additional file 1:

Interview guide topics.

Rights and permissions

Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Harris, H., Shier, R., Black, G. et al. Finding connection “while everything is going to crap”: experiences in Recovery Colleges during the COVID-19 pandemic. Res Involv Engagem 9, 77 (2023). https://doi.org/10.1186/s40900-023-00489-4

Download citation

  • Received:

  • Accepted:

  • Published:

  • DOI: https://doi.org/10.1186/s40900-023-00489-4

Keywords