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Patient and Public Involvement (PPI) is the active partnership between researchers, ... laypeople in the process of creating research. PPI in stroke aphasia research aims to ensure ... of people with aphasia in s...
The international literature on patient and public involvement (PPI) in research covers a wide range of ... patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of...
This commentary describes how patient public involvement has been used to adapt a website called ExerciseGuide UK. This website provides a personalised physical activity program and education to those diagnosed w...
Patient and Public Involvement (PPI) describes the active involvement of patients and ... the public in the research process. Through PPI, patients and members of the public are ... the design and conduct of clin...
Metastatic cancer is often experienced by patients as a death sentence. At the same time, translational scientists approach metastasis also as an interesting phenomenon that they try to understand and prevent. Th...
There is growing recognition of the importance of patient and public stakeholder involvement (PPI) in patient preference research. However, limited ... regarding the impact, barriers and enablers of PPI in prefer...
Young people with a chronic condition are increasingly involved in doing research and developing tools and interventions that concern them. Working together with patients is called Patient and Public Involvement ...
It has been increasingly recognized that patients should be actively involved in the design, conduct and dissemination of research. Besides empowering patients and democratizing research, involvement can enhance ...
Paediatric Intensive Care (PIC) provides care to extremely ill children. Research in this area can be difficult because children are often too sick to discuss being involved in a study and parents are too upset a...
This article is part of a Supplement: Volume 3 Supplement 1
The Correction to this article has been published in Research Involvement and Engagement 2018 4:12
While the patient and public involvement (PPI) evidence base has expanded over the past...
During the COVID-19 pandemic many work tasks are being done remotely through digital meetings, including PPI in research. Yet, some PPI activities have been paused or cancelled altogether ... vulnerable groups. A...
The first theme, ‘research as a vehicle to impact’ showed how interest in becoming involved in research was founded on the possibility of impacting healthcare through research. Other inspiring factors were how th...
In the COVID-19 pandemic, numerous researchers postponed their patient and public involvement (PPI) activities. This was mainly due to ... skills to participate digitally. In fact, digital PPI workshops differ fr...
Patient and public involvement (PPI) can help with steering and shaping research...
In recent years, projects to develop reporting guidelines have attempted to integrate the perspectives of patients and public members. Best practices for patient and public involvement (PPI) in such projects have...
There is a growing consensus among scholars, national governments, and intergovernmental organisations of the need to involve the public in decision-making around the use of artificial intelligence (AI) in soc...
The findings indicate that the PPP model is effective for embedding Public and Patient Involvement [PPI] within health services research, and recommends that PPI is integrated at the earliest opportunity within.....
After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
The original article was published in Research Involvement and Engagement 2017 3:27
Patient and public involvement (PPI) improves the quality of health research and ... research is relevant to patients’ needs. Though PPI is increasingly evident in clinical and health ... few examples in the rese...
Patient and public involvement (PPI) has become an essential part of the ... dissemination of research. While researchers who employed PPI mainly report on the positive aspects, in practice PPI is still an except...
ReIMAGINE aims to improve the current prostate specific antigen (PSA)/biopsy risk stratification for prostate cancer (PCa) and develop a new image-based method (with biomarkers) for diagnosing high/low risk PCa i...
Interest in patient involvement in research is growing. Research should rather be ‘with’ or ‘by’ patients, and not only be ‘about’ or ‘for’ patients. Patients’ active involvement in research is not self-eviden...
After a pre-measure of understanding was taken, we explored issues with the test instructions in patient and public involvement (PPI) sessions where children acted as advisers in ... (1–12 years old) in the subse...
Spinal manual therapy and corticosteroid nerve root injection are commonly used to treat patients with lumbar radiculopathy. The SALuBRITY trial—a two parallel group, double sham controlled, randomised clinica...
The quality of Patient and Public Involvement (PPI) in healthcare research varies considerably and is ... , to incentivise and celebrate continuous improvement in PPI.
The 2011 standards for trustworthy development of healthcare guidelines published by the United States-based Institute of Medicine recommend that guideline developers involve patients and public representative...
When planning a research project into patients’ experiences of online booking of GP appointments, we tried out a new way to get feedback from the public on our research ideas and design. As the research topic ...
If people can read, understand and act on health information to better their health and reduce illness, they are thought to have “adequate” health literacy. Poor health literacy can mean people are less able to a...
Patient and Public Involvement (PPI) in health research is gaining increased attention ... group interviews to explore the user experiences of PPI.
Patient and public involvement in health-related research is a new discipline in Denmark. In 2021, a national conference titled 'Patient and Public Involvement in Complex Intervention Research' provided a foru...
Patient and Public Involvement (PPI) in research is increasingly being utilized to ... . The Patient Engagement Studio (PES) supports PPI in research by working directly with researchers ... viable embryos. To da...
The findings are based on our reflections, a research diary, email correspondence and fieldnotes from co-design events. Co-design participants who attended most of the ten co-design events took part through writt...
Those whose lives are most directly impacted by health care—patients, caregivers, and frontline staff—are ideally situated to improve patient health care services and care quality. Despite a proliferation of lite...
Despite increasing interest in patient involvement in health care research, researchers may be uncertain about the benefits of involving patients in the design and conduction of clinical studies. We aimed to e...
There is huge commitment to public and patient involvement (PPI) in UK clinical research. Despite there being wide agreement to practice PPI and national guidance on the subject, there ... are few practical examp...
In 2015 a microbiology team in Bristol joined a European research project that aims to develop new antibiotics to fight drug resistant infections. The microbiology team were convinced of the benefits of patient a...
Twelve descriptive summaries emerged: (1) CCRF ‘role’ perspective (2) purpose, remit and future direction (3) aspirations (4) learning as reciprocation (5) regular meetings, contact and feedback (6) expectation s...
Patient and Public Involvement (PPI) is seen as a prerequisite for health ... an Advisory Group to analysing data. Different PPI roles have been described within studies; one...
The UK’s National Institute for Health Research (NIHR) Health Protection Research Unit in Emergency Preparedness and Response was asked to undertake research on how to reduce the impact of complex national/intern...
Many young adults with type 1 diabetes (T1D) find it hard to control their blood glucose levels. With lots of things going on in their lives, their diabetes is often not the most important thing to them. That ...
We successfully delivered two public engagement events. The success of the events has generated individual interest in PPI and enquiries about future events from neighbouring...
The ROLO Study (Randomised cOntrol trial of a Low glycaemic index diet in pregnancy to prevent macrosomia) was a randomised control trial conducted between 2007 and 2011 to examine if a low glycaemic index (GI) d...
Involving patients and the public in research helps to ensure that research remains relevant, and has an impact on the people it aims to benefit. Funding bodies now require patients and the public to be involv...
Patient safety is a growing research area. However, although patients and the public are increasingly involved in clinical research, there is little guidance on how best to involve patients in patient safety r...
The aim of this paper is to present our experiences from a shared working group (SWG) with patient representatives and researchers. The SWG collaborated on developing a psychosocial cancer rehabilitation inter...
Within health services research in the UK, there has been growing interest in evidence-based medicine (EBM) and patient and public involvement (PPI) in research. These two movements have ... their common concern....
ALL_EARS@UoS is a patient and public involvement and engagement (PPIE) group for people with lived experience of hearing loss. The purpose of the group is to share experiences of hearing loss and hearing healt...
Involving patients and their carers in research has become more common, as funders demand evidence of involvement. The ‘Patient Voice in Cancer Research’ (PVCR) is an initiative led by University College Dubli...
The use of new technologies and methodologies in young people’s mental health research is needed to allow more frequent and reliable sampling. Mobile applications and e-platforms create exciting potential for the...
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