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260 result(s) for 'ppi' within Research Involvement and Engagement

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  1. Exchanging experiences of patient and public involvement (PPI) can bring insights into why, how and when PPI is most effective. The aim of this...

    Authors: Emma Hovén, Lars Eriksson, Åsa Månsson D’Souza, Johanna Sörensen, David Hill, Carolin Viklund, Lena Wettergren and Claudia Lampic
    Citation: Research Involvement and Engagement 2020 6:33
    Content type: Research article Published on:

  2. An increasing number of research projects are now collaborating with persons who have lived experience of a specific health-related situation, such as a prenatal diagnosis of congenital heart defect. Such coll...

    Authors: Tommy Carlsson, Ulla Melander Marttala and Elisabet Mattsson
    Citation: Research Involvement and Engagement 2020 6:10
    Content type: Research article Published on:

  4. We consulted the Primary Care Research in Manchester Engagement Resource (PRIMER), an established departmental Patient and Public Involvement (PPI) group (N = 9) and then ran a workshop with 19 members of the pub...

    Authors: Brian McMillan, Sarah Fox, Moira Lyons, Suzy Bourke, Manoj Mistry, Angela Ruddock, Benjamin Brown, Mei Yee Tang and Harm Van Marwijk
    Citation: Research Involvement and Engagement 2018 4:18
    Content type: Research article Published on:

  5. Patients and researchers must work together to improve the relevance and quality of research. Qualitative systematic reviews synthesise findings from a range of published qualitative studies to identify common...

    Authors: Kerin Bayliss, Bella Starling, Karim Raza, Eva C. Johansson, Codruta Zabalan, Susan Moore, Diana Skingle, Tiina Jasinski, Susan Thomas and Rebecca Stack
    Citation: Research Involvement and Engagement 2016 2:18
    Content type: Research article Published on:

  6. Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been...

    Authors: Adele E. Connor, Claire Hughes, Lea Schäfer, Lorraine McNally, Deirdre O’ Raw, Katayoun Bahramian, Bridget Carr, Ingrid Halligan Dunne, Joanne Lysaght, Sharon A. O’ Toole, Jeremy C. Simpson and Antoinette S. Perry
    Citation: Research Involvement and Engagement 2023 9:90
    Content type: Comment Published on:

  7. There are increasing calls for patient involvement in sharing health research results, but no evidence-based recommendations to guide such involvement. Our objectives were to: (1) conduct a systematic review o...

    Authors: Lauri Arnstein, Anne Clare Wadsworth, Beverley Anne Yamamoto, Richard Stephens, Kawaldip Sehmi, Rachel Jones, Arabella Sargent, Thomas Gegeny and Karen L. Woolley
    Citation: Research Involvement and Engagement 2020 6:34
    Content type: Research article Published on:

  8. Public and patient involvement (PPI) through Young Person’s Advisory Groups ( ... provide guidance and insight into research activities. PPI is an important characteristic of research, however...

    Authors: Anna Delahunt, Sophie Callanan, Sarah Louise Killeen, Ciara M. McDonnell and Fionnuala M. McAuliffe
    Citation: Research Involvement and Engagement 2023 9:2
    Content type: Research Published on:

  9. Patient and Public Involvement (PPI) was integrated in the development of the ... format, and timing of sharing trial results. PPI-led improvements included the addition of three ... “next steps.” We reflect on o...

    Authors: Ami Baba, Dawn P. Richards, Maureen Smith, Nicole Pallone, Shelley Vanderhout, Matthew Prebeg, Ellen B. M. Elsman, Beth K. Potter, Martin Offringa and Nancy J. Butcher
    Citation: Research Involvement and Engagement 2023 9:88
    Content type: Comment Published on:

  10. Power assisted exercise is accessible and acceptable for people with stroke. The potential for technological advancement of the equipment to improve the user experience has been identified. Involvement of end ...

    Authors: Rachel Young, Karen Sage, David Broom, Katherine Broomfield, Gavin Church and Christine Smith
    Citation: Research Involvement and Engagement 2021 7:68
    Content type: Research article Published on:

  11. Including participants in patient and public involvement activities is increasingly acknowledged as a key pillar of successful research activity. Such activities can influence recruitment and retention, as well a...

    Authors: S. Gregory, E. M. Bunnik, A. B. Callado, I. Carrie, C. De Boer, J. Duffus, K. Fauria, S. Forster, D. Gove, I. Knezevic, A. Laquidain, D. Pennetier, S. Saunders, S. Sparks, J. Rice, C. W. Ritchie…
    Citation: Research Involvement and Engagement 2020 6:62
    Content type: Research article Published on:

  12. Digital contact tracing and exposure notification apps have quickly emerged as a potential solution to achieve timely and effective contact tracing for the SARS-CoV-2 virus. Nonetheless, their actual uptake re...

    Authors: Esli Osmanlliu, Jesseca Paquette, Annie-Danielle Grenier, Paul Lewis, Marie-Eve Bouthillier, Sylvain Bédard and Marie-Pascale Pomey
    Citation: Research Involvement and Engagement 2022 8:37
    Content type: Methodology Published on:

  13. Patients usually understand their disease and lifestyle needs better than many medical professionals. They also have important ideas about what research would be most beneficial to their lives, especially on h...

    Authors: Laura B. Mader, Tess Harris, Sabine Kläger, Ian B. Wilkinson and Thomas F. Hiemstra
    Citation: Research Involvement and Engagement 2018 4:21
    Content type: Commentary Published on:

  15. Patient and Public Involvement (PPI) in health and social care research has ... improve the quality and relevance of research. PPI in data linkage research is important in...

    Authors: Amelia Jewell, Megan Pritchard, Katherine Barrett, Patrick Green, Sarah Markham, Sharon McKenzie, Roger Oliver, Maria Wan, Johnny Downs and Robert Stewart
    Citation: Research Involvement and Engagement 2019 5:20
    Content type: Research article Published on:

  16. Biobanks are collections of donations of biological material (DNA, cells, tissue etc.) and related data which are very valuable for research into human diseases. A variety of biobanks exist for example within ...

    Authors: Derick Mitchell, Jan Geissler, Alison Parry-Jones, Hans Keulen, Doris C. Schmitt, Rosaria Vavassori and Balwir Matharoo-Ball
    Citation: Research Involvement and Engagement 2015 1:4
    Content type: Review article Published on:

  17. There is significant value in co-produced health research, however power-imbalances within research teams can pose a barrier to people with lived experience of an illness determining the direction of research ...

    Authors: Cat Papastavrou Brooks, Eshika Kafle, Natali Butt, Dave Chawner, Anna Day, Chloë Elsby-Pearson, Emily Elson, John Hammond, Penny Herbert, Catherine L. Jenkins, Zach Johnson, Sarah Helen Keith-Roach, Eirini Papasileka, Stella Reeves, Natasha Stewart, Nicola Gilbert…
    Citation: Research Involvement and Engagement 2023 9:84
    Content type: Methodology Published on:

  18. There is a need to develop innovative solutions to enhance safe and green physical environments, which optimise health, wellbeing and community participation among older adults. To develop solutions that meet ...

    Authors: Anna L. Hatton, Catherine Haslam, Sarah Bell, Joe Langley, Ryan Woolrych, Corrina Cory, James M. W. Brownjohn and Victoria A. Goodwin
    Citation: Research Involvement and Engagement 2020 6:45
    Content type: Research article Published on:

  19. Patient engagement in research consists in involving patients as partners across the research cycle. This practice has quickly become an international standard, with funding bodies actively encouraging it. As ...

    Authors: Jonathan Lauzon-Schnittka, Sophie Audette-Chapdelaine, Denis Boutin, Catherine Wilhelmy, Anne-Marie Auger and Magaly Brodeur
    Citation: Research Involvement and Engagement 2022 8:55
    Content type: Review article Published on:

  20. The chronic complications of ageing with HIV are not well studied in sub-Saharan Africa (SSA) where general healthcare resources are limited. We aimed to collaborate with individuals living with HIV aged ≥ 50 ...

    Authors: Ellisiv Clarke, Grace Anderson-Saria, Aloyce Kisoli, Sarah Urasa, Susan Moloney, Ssenku Safic, Jane Rogathi, Richard Walker, Louise Robinson and Stella-Maria Paddick
    Citation: Research Involvement and Engagement 2023 9:3
    Content type: Research Published on:

  21. A patient panel at Kræftværket, the Youth Panel has multiple aims, one of which is the ability to perform patient involvement in research, with the goal of achieving research of high quality. We here describe how...

    Authors: Helle Pappot, Sara Kaa Meier, Maiken Hjerming, Karin Piil and Signe Hanghøj
    Citation: Research Involvement and Engagement 2023 9:56
    Content type: Comment Published on:

  22. People with osteoarthritis desire high quality care, support and information. However, the quality of care for people with OA in general practice is not routinely collected. Quality Indicators can be used to b...

    Authors: Steven Blackburn, Adele Higginbottom, Robert Taylor, Jo Bird, Nina Østerås, Kåre Birger Hagen, John J. Edwards, Kelvin P. Jordan, Clare Jinks and Krysia Dziedzic
    Citation: Research Involvement and Engagement 2016 2:5
    Content type: Research article Published on:

  23. ...A regional Research Design Service, funded by the National Institute for Health Research, introduced a small grant in 2008, to support public involvement (often known as patient and public involvement [PPI]) a...

    Authors: Susan Baxter, Delia Muir, Louise Brereton, Christine Allmark, Rosemary Barber, Lydia Harris, Brian Hodges, Samaira Khan and Wendy Baird
    Citation: Research Involvement and Engagement 2016 2:13
    Content type: Research article Published on:

  24. Involving patients in scientific research has been shown to improve the relevance of the research, as well as its quality and applicability. Harteraad, the Dutch patient organization for people with cardiovasc...

    Authors: Eva Vroonland, Inge Schalkers, Daphne Bloemkolk and Christine Dedding
    Citation: Research Involvement and Engagement 2019 5:29
    Content type: Research article Published on:

  25. As the role of Patient and Public Involvement contributors expands to all stages of the research cycle, there is increasing demand for training that meets the needs of this diverse population. To help meet thi...

    Authors: Catherine Richardson, Ilyas Akhtar, Christine Smith, Amanda Edmondson, Alison Morris, Janet Hargreaves, Christine Rhodes and Jo Taylor
    Citation: Research Involvement and Engagement 2019 5:21
    Content type: Research article Published on:

  26. Patient or user involvement in health research is well-established but is often limited to advising on research questions and design, leaving researchers to collect and analyse ‘data’ (which in this paper mean...

    Authors: Louise Locock, Susan Kirkpatrick, Lucy Brading, Gordon Sturmey, Jocelyn Cornwell, Neil Churchill and Glenn Robert
    Citation: Research Involvement and Engagement 2019 5:1
    Content type: Methodology Published on:

    The Letter to this article has been published in Research Involvement and Engagement 2019 5:27

  28. During care transitions, the older (75+) patient’s agenda can easily be missed. To counteract this, involving patients in shared clinical decision making has proven to be of great value. Likewise, involving patie...

    Authors: Troels Kjærskov Hansen, Annesofie Lunde Jensen, Else Marie Damsgaard, Tone Maria Mørck Rubak, Mikkel Erik Juul Jensen and Merete Gregersen
    Citation: Research Involvement and Engagement 2021 7:36
    Content type: Research article Published on:

  29. Citizen engagement, or partnering with interested members of the public in health research, is becoming more common. While ongoing assessment of citizen engagement practices is considered important to its succ...

    Authors: Anmol Shahid, Inara N. Lalani, Brianna K. Rosgen, Bonnie G. Sept, Shelly Longmore, Jeanna Parsons Leigh, Henry T. Stelfox and Kirsten M. Fiest
    Citation: Research Involvement and Engagement 2022 8:72
    Content type: Review Published on:

  30. Existing impact frameworks and guidelines were reviewed. Members co-produced and piloted qualitative questionnaires to identify values associated with patient and public involvement (PPI) from both a researcher a...

    Authors: Jim Gordon, Sue Franklin and Sabrina A. Eltringham
    Citation: Research Involvement and Engagement 2018 4:11
    Content type: Commentary Published on:

  32. In the United Kingdom (UK), official bodies such as the Department of Health and research funders such as the National Institute for Health Research support and encourage lay involvement in all stages of research...

    Authors: Carole Mockford, Matt Murray, Kate Seers, Jan Oyebode, Richard Grant, Sue Boex, Sophie Staniszewska, Yvonne Diment, Jim Leach, Uma Sharma, Rosemary Clarke and Rashida Suleman
    Citation: Research Involvement and Engagement 2016 2:8
    Content type: Research article Published on:

  33. Ultrasound examinations during pregnancy have led to an increased number of detected heart defects in fetuses. Pregnant women and their partners are often unprepared for these news, and experience several diff...

    Authors: Tommy Carlsson, Ulla Melander Marttala, Barbro Wadensten, Gunnar Bergman and Elisabet Mattsson
    Citation: Research Involvement and Engagement 2016 2:35
    Content type: Research article Published on:

  34. Implicating patients in research is gaining popularity around the world and is now the reference of many funding agencies. Understanding these partnerships is necessary to grasp this new reality. The experienc...

    Authors: Marie-Mychèle Pratte, Sophie Audette-Chapdelaine, Anne-Marie Auger, Catherine Wilhelmy and Magaly Brodeur
    Citation: Research Involvement and Engagement 2023 9:22
    Content type: Review Published on:

  35. This paper considers remote working in patient public involvement and engagement (PPIE) in health and social care research. With the advent of the Covid-19 pandemic and associated lock-down measures in the UK ...

    Authors: Elisa Jones, Lucy Frith, Mark Gabbay, Naheed Tahir, Muhammad Hossain, Mark Goodall, Katie Bristow and Shaima Hassan
    Citation: Research Involvement and Engagement 2022 8:58
    Content type: Research Published on:

  36. The role of patients in cancer research is undergoing a significant evolution as all stakeholders seek to enhance the level of direct patient involvement in the design and development of clinical trials. Howev...

    Authors: Alexandre B. Costa Alencar, Wendy K. D. Selig, Jan Geissler, Tamás Bereczky, Alba Ubide, David Haerry, Richard Stephens and Valerie Behan
    Citation: Research Involvement and Engagement 2023 9:6
    Content type: Comment Published on:

  37. Within the United Kingdom (UK), the National Institute for Health and Care Research is the largest funder of health and social care research, and additionally funds research centres that support the developmen...

    Authors: Alice Moult, Dereth Baker, Ali Aries, Paul Bailey, Steven Blackburn, Tom Kingstone, Saumu Lwembe and Zoe Paskins
    Citation: Research Involvement and Engagement 2023 9:109
    Content type: Research Published on:

  38. Public and patient involvement aims to improve research quality, relevance, and appropriateness. Despite an increasing evidence base on the influence of public involvement in health research, the role of invol...

    Authors: Nikita N. Burke, Derek Stewart, Theresa Tierney, Andrew Worrall, Maureen Smith, Jim Elliott, Claire Beecher, Declan Devane and Linda Biesty
    Citation: Research Involvement and Engagement 2023 9:29
    Content type: Research Published on:

  39. Long-term care (LTC) settings have been disproportionately affected by the COVID-19 pandemic; it is important to address unmet needs and explore practical strategies for supporting LTC residents and staff. The...

    Authors: Lillian Hung, Charlie Lake, Ali Hussein, Joey Wong and Jim Mann
    Citation: Research Involvement and Engagement 2023 9:12
    Content type: Research Published on:

  40. Established in 2015, the Multi-Stakeholder Engagement (MuSE) Consortium is an international network of over 120 individuals interested in stakeholder engagement in research and guidelines. The MuSE group is de...

    Authors: Jennifer Petkovic, Olivia Magwood, Lyubov Lytvyn, Joanne Khabsa, Thomas W. Concannon, Vivian Welch, Alex Todhunter-Brown, Marisha E. Palm, Elie A. Akl, Lawrence Mbuagbaw, Thurayya Arayssi, Marc T. Avey, Ana Marusic, Richard Morley, Michael Saginur, Nevilene Slingers…
    Citation: Research Involvement and Engagement 2023 9:27
    Content type: Research Published on:

  41. Female Genital Mutilation (FGM) is all practices involving cutting, alteration or injury to the female genitalia for non-medical reasons. It is a form of violence against women and children, with no benefits and ...

    Authors: S. Dixon, K. Agha, F. Ali, L. El-Hindi, B. Kelly, L. Locock, N. Otoo-Oyortey, S. Penny, E. Plugge and L. Hinton
    Citation: Research Involvement and Engagement 2018 4:29
    Content type: Research article Published on:

  42. The James Lind Alliance (JLA) brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise shared uncertainties about the effects of treatment. The JLA eme...

    Authors: Mary Madden and Richard Morley
    Citation: Research Involvement and Engagement 2016 2:12
    Content type: Research article Published on:

  43. Many young adults with type 1 diabetes struggle with the day-to-day management of their condition. They often find it difficult to find the time to attend their clinic appointments and to meet with their diabe...

    Authors: M. C. O’Hara, L. Hynes, M. O’Donnell, C. Keighron, G. Allen, A. Caulfield, C. Duffy, M. Long, M. Mallon, M. Mullins, G. Tonra, M. Byrne and S. F. Dinneen
    Citation: Research Involvement and Engagement 2017 3:25
    Content type: Methodology Published on:

  44. Co-producing research with members of the public is increasingly recognised as a valuable process. Yet, despite these good intentions, the literature on coproduction has struggled to keep pace with the coprodu...

    Authors: Tracey McConnell, Paul Best, Gavin Davidson, Tom McEneaney, Cherry Cantrell and Mark Tully
    Citation: Research Involvement and Engagement 2018 4:32
    Content type: Research article Published on:

  45. Outcome domains are aspects of a condition that matter to patients and clinicians and can be measured to assess treatment effects. For tinnitus, examples include ‘tinnitus loudness’ and ‘ability to concentrate...

    Authors: Harriet Smith, Adele Horobin, Kathryn Fackrell, Veronica Colley, Brian Thacker and Deborah A. Hall
    Citation: Research Involvement and Engagement 2018 4:8
    Content type: Methodology Published on:

  46. Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually de...

    Authors: Leah Holmes, Katharine Cresswell, Susannah Williams, Suzanne Parsons, Annie Keane, Cassie Wilson, Safina Islam, Olivia Joseph, Jahanara Miah, Emily Robinson and Bella Starling
    Citation: Research Involvement and Engagement 2019 5:30
    Content type: Methodology Published on:

  48. The goal of the Global Health in Preconception, Pregnancy and Postpartum (HiPPP) Alliance, comprising consumers and leading international multidisciplinary academics and clinicians, is to generate research and...

    Authors: Heidi J. Bergmeier, Virginia Vandall-Walker, Magdalena Skrybant, Helena J. Teede, Cate Bailey, Jo-Anna B. Baxter, Ana Luiza Vilela Borges, Jacqueline A. Boyle, Ayesha Everitt, Cheryce L. Harrison, Margely Herrera, Briony Hill, Brian Jack, Samuel Jones, Laura Jorgensen, Siew Lim…
    Citation: Research Involvement and Engagement 2020 6:47
    Content type: Research article Published on:

  49. A growing trend in research is to involve co-researchers. It is referred to as Patient and Public Involvement (PPI) and comprises three groups: the patients,...

    Authors: Laura Postma, Malou L. Luchtenberg, A. A. Eduard Verhagen and Els L. M. Maeckelberghe
    Citation: Research Involvement and Engagement 2021 7:30
    Content type: Research article Published on:

  50. Participatory research is an empowering process through which individuals can increase control over their lives, and allows researchers/clinicians to gain a clearer understanding of a child’s needs. However, i...

    Authors: Laura S. Nixon, Nicky Hudson, Lorraine Culley, Maya Lakhanpaul, Noelle Robertson, Mark R. D. Johnson, Melanie McFeeters, Narynder Johal, Charlotte Hamlyn-Williams, Yebeen Ysabelle Boo and Monica Lakhanpaul
    Citation: Research Involvement and Engagement 2022 8:9
    Content type: Commentary Published on:
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Research Involvement and Engagement

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