Cancer Research UK. Available from: https://www.cancerresearchuk.org/health-professional/cancer-statistics/incidence.
Office for National Statistics. Living longer: how our population is changing and why it matters. London: Office for National Statistics; 2018.
Harrison SE, Watson EK, Ward AM, Khan NF, Turner D, Adams E, et al. Primary health and supportive care needs of long-term cancer survivors: a questionnaire survey. J Clin Oncol. 2011;29(15):2091–8.
Corner J, Wagland R, Glaser A, Richards M. Qualitative analysis of patients' feedback from a PROMs survey of cancer patients in England. BMJ Open. 2013;3(4) no pagination:e002316.
McLean G, Gunn J, Wyke S, Guthrie B, Watt GC, Blane DN, et al. The influence of socioeconomic deprivation on multimorbidity at different ages: a cross-sectional study. Brit J Gen Pract. 2014;64(624):e440–7.
Barnett K, Mercer SW, Norbury M, Watt G, Wyke S, Guthrie B. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet (London, England). 2012;380(9836):37–43.
Smith AW, Reeve BB, Bellizzi KM, Harlan LC, Klabunde CN, Amsellem M, et al. Cancer, comorbidities, and health-related quality of life of older adults. Health Care Financ Rev. 2008;29(4):41–56.
Mason B, Nanton V, Epiphaniou E, Murray SA, Donaldson A, Shipman C, et al. 'My body's falling apart.' understanding the experiences of patients with advanced multimorbidity to improve care: serial interviews with patients and carers. BMJ Support Palliat Care. 2014;6:60–65.
Department of Health. Cancer reform strategy; 2007.
NHS Health Improvement and Macmillan Cancer Support. National Cancer Survivorship Initiative: vision; 2010.
Scottish Government. Better cancer care: an action plan; 2008.
Adams E, Boulton M, Rose PW, Lund S, Richardson A, Wilson S, et al. A qualitative study exploring the experience of the partners of cancer survivors and their views on the role of primary care. Support Care Cancer. 2012;20(11):2785–94.
Watson EK, Rose PW, Loftus R, Devane C. Cancer survivorship: the impact on primary care. Brit J Gen Pract. 2011;61(592):e763–5.
Watson EK, O'Brien R, Campbell C, Weller D, Neal RD, Wilkinson C, et al. Views of health professionals on the role of primary care in the follow-up of men with prostate cancer. Fam Pract. 2011;28(6):647–54.
O'Brien R, Wyke S, Guthrie B, Watt G, Mercer S. An 'endless struggle': a qualitative study of general practitioners' and practice nurses' experiences of managing multimorbidity in socio-economically deprived areas of Scotland. Chronic Illn. 2011;7(1):45–59.
Cavers D, Habets L, Cunningham-Burley S, Watson E, Banks E, Campbell C. Living with and beyond cancer with comorbid illness: a qualitative systematic review and evidence synthesis. J Cancer Survivorship : Res Practice. 2019;13(1):148–59.
Smith SM, Soubhi H, Fortin M, Hudon C, O'Dowd T. Managing patients with multimorbidity: systematic review of interventions in primary care and community settings. BMJ (Clinical research ed). 2012;345:e5205.
France EF, Wyke S, Gunn JM, Mair FS, McLean G, Mercer SW. Multimorbidity in primary care: a systematic review of prospective cohort studies. British J General Pract. 2012;62(597):e297–307.
Corbett T, Bridges J. Multimorbidity in older adults living with and beyond cancer. Curr Opin Support Palliat Care. 2019;13(3):220–4.
Blane DN, Lewandowska M. Living with cancer and multimorbidity: the role of primary care. Curr Opin Support Palliat Care. 2019;13(3):213–9.
Rubin G, Berendsen A, Crawford SM, Dommett R, Earle C, Emery J, et al. The expanding role of primary care in cancer control. Lancet Oncol. 2015;16(12):1231–72.
Snyder CF, Frick KD, Herbert RJ, Blackford AL, Neville BA, Lemke KW, et al. Comorbid condition care quality in cancer survivors: role of primary care and specialty providers and care coordination. J Cancer Survivorship : Res Practice. 2015;9(4):641–9.
Coventry PA, Small N, Panagioti M, Adeyemi I, Bee P. Living with complexity; marshalling resources: a systematic review and qualitative meta-synthesis of lived experience of mental and physical multimorbidity. BMC Fam Pract. 2015;16(1):171.
Smith E, Bélisle-Pipon J-C, Resnik D. Patients as research partners; how to value their perceptions, contribution and labor? Citizen Sci Theory Pract. 2019;4(1):15.
Johnson DS, Bush MT, Brandzel S, Wernli KJ. The patient voice in research—evolution of a role. Res Involvement Engagement. 2016;2(1):1–6.
Pinnock H, Ostrem A, Rodriguez MR, Ryan D, Stallberg B, Thomas M, et al. Prioritising the respiratory research needs of primary care: the international primary care respiratory group (IPCRG) e-Delphi exercise. Prim Care Respir J. 2012;21(1):19–27.
Rao JK, Anderson LA, Sukumar B, Beauchesne DA, Stein T, Frankel RM. Engaging communication experts in a Delphi process to identify patient behaviors that could enhance communication in medical encounters. BMC Health Serv Res. 2010;10:97.
Yoshida S. Approaches, tools and methods used for setting priorities in health research in the 21(st) century. J Glob Health. 2016;6(1):010507.
Rudan I. Setting health research priorities using the CHNRI method: IV. Key conceptual advances. J Glob Health. 2016;6(1):010501.
Forbat L, Hubbard G. Service user involvement in research may lead to contrary rather than collaborative accounts: findings from a qualitative palliative care study. J Adv Nurs. 2015;72(4):759–769.
Weiner M. The potential of crowdsourcing to improve patient-centered care. Patient. 2014;7(2):123–7.
Bhaumik S, Rana S, Karimkhani C, Welch V, Armstrong R, Pottie K, et al. Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups. Indian J Med Ethics. 2015;12(2):110–3.
Maguire K, Britten N. 'You're there because you are unmanuscriptrofessional': patient and public involvement as liminal knowledge spaces; 2017. p. 40.
Alsaeed D, Davies N, Gilmartin JF-M, Jamieson E, Kharicha K, Liljas AEM, et al. Older people’s priorities in health and social care research and practice: a public engagement workshop. Research Involve Engage. 2016;2(1):1–9.
Viergever RF, Olifson S, Ghaffar A, Terry RF. A checklist for health research priority setting: nine common themes of good practice. Health Res Policy Syst. 2010;8:36.
Randall W, Phoenix C. The problem with truth in qualitative interviews: reflections from a narrative perspective; 2009. p. 125–40.
Crowe S, Fenton M, Hall M, Cowan K, Chalmers I. Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch. Res Involvement Engagement. 2015;1(1):2.
Irwin A. Anticipating engagement among critical regimes YouTube: Arizona State University; 2010. Available from: https://www.youtube.com/watch?v=TFns52m-wL4.
Thompson J, Bissell P, Cooper CL, Armitage CJ, Barber R. Exploring the impact of patient and public involvement in a cancer research setting. Qual Health Res. 2014;24(1):46–54.
Madden M, Speed E. Beware zombies and unicorns: toward critical patient and public involvement in Health Research in a neoliberal context. Front Sociol. 2017;2:7.
Rowland P, McMillan S, McGillicuddy P, Richards J. What is "the patient perspective" in patient engagement programs? Implicit logics and parallels to feminist theories. Health (London, England: 1997). 2016;21(1):76–92.
Woolley JP, McGowan ML, Teare HJ, Coathup V, Fishman JR, Settersten RA Jr, et al. Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives. BMC Med Ethics. 2016;17(1):33.
Goldstein MM, Bowers DG. The patient as consumer: empowerment or commodification? Currents in contemporary bioethics. J Law Med Ethics. 2015;43(1):162–5.
Rockliffe L, Chorley AJ, Marlow LAV, Forster AS. It’s hard to reach the “hard-to-reach”: the challenges of recruiting people who do not access preventative healthcare services into interview studies. Int J Qual Stud Health Well Being. 2018;13(1):1479582.
Doria N, Condran B, Boulos L, Curtis Maillet DG, Dowling L, Levy A. Sharpening the focus: differentiating between focus groups for patient engagement vs. qualitative research. Res Involvement Engagement. 2018;4(1):19.
Ives J, Damery S, Redwod S. PPI, paradoxes and Plato: who's sailing the ship? J Med Ethics. 2013;39(3):181–5.