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257 result(s) for 'ppi' within Research Involvement and Engagement

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  1. Authors: Rebecca Foster, Hannah Carver, Jason Wallace, Alex Dunedin, Stan Burridge, Philip Foley, Bernie Pauly and Tessa Parkes
    Citation: Research Involvement and Engagement 2022 8:17
    Content type: Correction Published on:

    The original article was published in Research Involvement and Engagement 2021 7:82

  2. Patient and Public Involvement (PPI) groups are becoming more established as collaborators ... Public Involvement in Research embody best practice for PPI, including support and learning opportunities that build....

    Authors: Anna De Simoni, Tracy Jackson, Wendy Inglis Humphrey, Jennifer Preston, Heather Mah, Helen E. Wood, Emma Kinley, Laura Gonzalez Rienda and Carol Porteous
    Citation: Research Involvement and Engagement 2023 9:16
    Content type: Comment Published on:

  3. There is evidence in the literature showing that involving patients and the public in health research can have a positive influence on quality, relevance and impact of research. However, patients and the public a...

    Authors: Shoba Dawson, Angela Ruddock, Veena Parmar, Rebecca Morris, Sudeh Cheraghi-Sohi, Sally Giles and Stephen Campbell
    Citation: Research Involvement and Engagement 2020 6:23
    Content type: Research article Published on:

  5. Incorporating Public and Patient Involvement (PPI) into doctoral research is valued by PhD ... appropriate training to develop skills to conduct meaningful PPI involvement is important. The Health Research Board ...

    Authors: Maria Pierce, Louise Foley, Bridget Kiely, Aisling Croke, James Larkin, Susan M. Smith, Barbara Clyne and Edel Murphy
    Citation: Research Involvement and Engagement 2023 9:105
    Content type: Research Published on:

  6. The Wales Cancer Research Centre (WCRC) was established in 2015. It made an early and strong commitment to Public and Patient Involvement (PPI) in all its work. That commitment ... administrator to develop and im...

    Authors: Jim Fitzgibbon, Kate Cleary and Annmarie Nelson
    Citation: Research Involvement and Engagement 2020 6:55
    Content type: Commentary Published on:

  7. Patient and public involvement (PPI) in health and social care research is ... considered important internationally, with increasing evidence that PPI improves the quality, relevance and outcomes of ... been a gr...

    Authors: Julia Jones, Marion Cowe, Sue Marks, Tony McAllister, Alex Mendoza, Carole Ponniah, Helena Wythe and Elspeth Mathie
    Citation: Research Involvement and Engagement 2021 7:52
    Content type: Research article Published on:

  8. Service users should be involved in every part of the research process, including analysis of qualitative research data such as interviews and focus groups. To enhance their participation, confidence and contribu...

    Authors: Alison Cowley, Margaret Kerr, Janet Darby and Pip Logan
    Citation: Research Involvement and Engagement 2019 5:22
    Content type: Commentary Published on:

  9. Including patient and public involvement (PPI) in health research is thought to improve ... exactly how it helps. This is because PPI takes many forms, is sometimes only token ... can be reached about the ingredi...

    Authors: Cindy Mann, Simon Chilcott, Katrina Plumb, Edmund Brooks and Mei-See Man
    Citation: Research Involvement and Engagement 2018 4:15
    Content type: Research article Published on:

  10. Funders of research are increasingly requiring researchers to involve patients and the public in their research. Patient and public involvement (PPI) in research can potentially help researchers make ... friendly...

    Authors: Heather J. Bagley, Hannah Short, Nicola L. Harman, Helen R. Hickey, Carrol L. Gamble, Kerry Woolfall, Bridget Young and Paula R. Williamson
    Citation: Research Involvement and Engagement 2016 2:15
    Content type: Research article Published on:

  12. This article describes the activities and lessons learned from the involvement of an Experts by Experience group in a National Institute for Health Research (NIHR) study. The study was about peer support for peop...

    Authors: Rebecca Foster, Hannah Carver, Jason Wallace, Alex Dunedin, Stan Burridge, Philip Foley, Bernie Pauly and Tessa Parkes
    Citation: Research Involvement and Engagement 2021 7:82
    Content type: Commentary Published on:

    The Correction to this article has been published in Research Involvement and Engagement 2022 8:17

  13. Increasing the accessibility of public and patient involvement (PPI) in health research for people from diverse ... voices are heard and represented. Critiques of PPI being dominated by ‘the usual suspects’ ... r...

    Authors: Joanna Reynolds, Margaret Ogden and Ruth Beresford
    Citation: Research Involvement and Engagement 2021 7:53
    Content type: Research article Published on:

  14. Health research in the UK requires patients, those with lived experience and members of the public to be involved in designing and shaping research: many of them have reported that their comments and suggestions ...

    Authors: Elspeth Mathie, Nigel Smeeton, Diane Munday, Graham Rhodes, Helena Wythe and Julia Jones
    Citation: Research Involvement and Engagement 2020 6:40
    Content type: Research article Published on:

  15. This study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized ... . The aim was to capture experiences of PPI across the five countries, explore t...

    Authors: Jodie Bloska, Sarah Crabtree, Nina Wollersberger, Oti Mitchell, Jenny Coles, Caroline Halsey, Geraldine Parry, Robert Stewart, Susan Thacker, Mark Thacker, Leica Claydon-Mueller, Yvette Winnard, Kate McMahon, Carina Petrowitz, Agnieszka Smrokowska-Reichmann, Beatrix van Doorn…
    Citation: Research Involvement and Engagement 2024 10:43
    Content type: Research Published on:

  16. Patient and Public Involvement (PPI) in aphasia research requires researchers to include ... in the absence of a framework to guide PPI in aphasia research. This study aimed to ... Involvement (PAOLI) framework f...

    Authors: Marina Charalambous, Alexia Kountouri, Jürg Rainer Schwyter, Jean-Marie Annoni and Maria Kambanaros
    Citation: Research Involvement and Engagement 2023 9:74
    Content type: Research Published on:

  18. Our aim was to provide a reflective narrative account of the involvement of CYP, over a period of 5 years, in a research project from conception of a new paediatric medical device through to practical application...

    Authors: Nichola Abrehart, Kate Frost, Roy Harris, Andrew Wragg, Derek Stewart, Hayfa Sharif, Rachel Matthews and Luca Marciani
    Citation: Research Involvement and Engagement 2021 7:2
    Content type: Commentary Published on:

  19. When designing clinical trials it is important to involve members of the public, who can provide a view on what may encourage or prevent people participating and on what matters to them. This is known as Public a...

    Authors: Juliet Rayment, Rosemary Lanlehin, Christine McCourt and Shahid M. Husain
    Citation: Research Involvement and Engagement 2017 3:11
    Content type: Research article Published on:

  20. The value and importance of qualitative research and Patient and Public Involvement (PPI) for developing complex health interventions is widely...

    Authors: Ingrid Muller, Miriam Santer, Leanne Morrison, Kate Morton, Amanda Roberts, Cathy Rice, Marney Williams and Lucy Yardley
    Citation: Research Involvement and Engagement 2019 5:34
    Content type: Methodology Published on:

  21. The importance of patient and public involvement (PPI) in the design and conduct of health ... it is still a developing area. Furthermore, PPI in methodological health research can help increase ... learn about t...

    Authors: Alice M. Biggane, Maria Olsen and Paula R. Williamson
    Citation: Research Involvement and Engagement 2019 5:35
    Content type: Commentary Published on:

  22. It is recommended that research studies are carried out with or by patients and the public through their involvement from the beginning and in as many stages as possible (known as PPI). Some studies formally invi...

    Authors: Heather Morgan, Gill Thomson, Nicola Crossland, Fiona Dykes and Pat Hoddinott
    Citation: Research Involvement and Engagement 2016 2:7
    Content type: Methodology Published on:

  23. In the UK, more patients go to primary care than other parts of the health service. Therefore it is important for research into primary care to include the insights and views of people who receive these services....

    Authors: Steven Blackburn, Sarah McLachlan, Sue Jowett, Philip Kinghorn, Paramjit Gill, Adele Higginbottom, Carol Rhodes, Fiona Stevenson and Clare Jinks
    Citation: Research Involvement and Engagement 2018 4:16
    Content type: Research article Published on:

  24. Patient and public involvement (PPI) ensures that research is designed and conducted ... is required by many funding bodies. However, PPI in statistical methodology research is more challenging...

    Authors: Lucy Abell, Francesca Maher, Samina Begum, Sarah Booth, Jonathan Broomfield, Sangyu Lee, Ellesha Smith, Rachael Stannard, Lucy Teece, Elpida Vounzoulaki, Hannah Worboys and Laura J. Gray
    Citation: Research Involvement and Engagement 2023 9:100
    Content type: Research Published on:

  25. Rare diseases where prognosis is poor provide limited scope for patient and public involvement (PPI). One such disease is mesothelioma, a ... peritoneum caused by exposure to asbestos, where PPI is poorly documen...

    Authors: Afrodita Marcu, Fiona McGregor, Bernadette Egan, Kate Hill, Tim Cook and Anne Arber
    Citation: Research Involvement and Engagement 2023 9:15
    Content type: Research Published on:

  26. Patient and Public Involvement (PPI) in clinical trial research is recognised as ... as more challenging and not often reported. PPI within the UK Coronavirus Immunology Consortium (UK ... patients and the public...

    Authors: Erika Neves Aquino, Paul Moss, Mo Hafeez, Robert Jasper, Tony Kelly, Lynn Laidlaw and Vivienne Wilkes
    Citation: Research Involvement and Engagement 2023 9:34
    Content type: Comment Published on:

  28. Patient and public involvement (PPI) in research has increased steadily over the ... Institute for Health Research (NIHR). However, PPI in research occurs in many different capacities ... of this article is to de...

    Authors: Alison M. Aries, Paul Bailey and Susan M. Hunter
    Citation: Research Involvement and Engagement 2021 7:87
    Content type: Research article Published on:

  29. There are marked inequalities in palliative care provision. Research is needed to understand how such inequalities can be addressed, so that everyone living with advanced illness can receive the care they need, w...

    Authors: Sarah Mitchell, Nicola Turner, Kate Fryer, Jude Beng, Margaret E. Ogden, Melanie Watson, Clare Gardiner, Joanne Bayly, Katherine E. Sleeman and Catherine J. Evans
    Citation: Research Involvement and Engagement 2024 10:19
    Content type: Methodology Published on:

  30. Patient and public involvement (PPI) is increasingly seen as essential to health ... strong moral and ethical arguments for good quality PPI. Despite the development of guidance aimed at addressing the inconsiste...

    Authors: Alice Moult, Carmel McGrath, Kate Lippiett, Caroline Coope, Simon Chilcott, Cindy Mann, Nicola Evans, Andrew Turner, Krysia Dziedzic, M. C. Portillo and Rachel Johnson
    Citation: Research Involvement and Engagement 2023 9:37
    Content type: Protocol Published on:

  31. A total of 56 publications were included, consisting of 39 empirical and 17 non-empirical sources. Gray literature varied among countries and institutions encompassing different types of documents. We found an in...

    Authors: Kristine Elberg Dengsø, Sofie Tscherning Lindholm, Suzanne Forsyth Herling, Maja Pedersen, Kristina Holmegaard Nørskov, Marie Oxenbøll Collet, Iben Husted Nielsen, Mille Guldager Christiansen, Mette Schaufuss Engedal, Helga Wallin Moen, Karin Piil, Ingrid Egerod, Mogens Hørder and Mary Jarden
    Citation: Research Involvement and Engagement 2023 9:72
    Content type: Review Published on:

  32. Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK). There are a number of regional networks of Patient and Public Involv...

    Authors: Elspeth Mathie, Helena Wythe, Diane Munday, Graham Rhodes, Penny Vicary, Paul Millac and Julia Jones
    Citation: Research Involvement and Engagement 2018 4:48
    Content type: Research article Published on:

  33. Patient and public involvement (PPI) in health research may improve both the ... investigating the experiences, attitudes and barriers towards PPI in clinical research in Norway. The Norwegian ... Network therefo...

    Authors: Sigve Nyvik Aas, Marita Borg Distefano, Ingvild Pettersen, Berit Gravrok, Laila Yvonne Nordvoll, Jon Fauskanger Bjaastad and Sameline Grimsgaard
    Citation: Research Involvement and Engagement 2023 9:48
    Content type: Research Published on:

  34. The National Institute for Health and Care Research (NIHR) Policy Research Unit in Behavioural Science (PRU-BS) was funded to inform government on the application of behavioural science in health and social care ...

    Authors: Dave Green, Val Bryant, Stuart Edwards, Caroline Kemp, Maisie McKenzie, Sudhir Shah and Irene Soulsby
    Citation: Research Involvement and Engagement 2023 9:1
    Content type: Comment Published on:

  35. Smartphones are being increasingly used for research owing to their multifunctionality and flexibility, and crowdsourced research using smartphone applications (apps) is effective in the early detection and manag...

    Authors: Kenta Fujio, Takenori Inomata, Kumiko Fujisawa, Jaemyoung Sung, Masahiro Nakamura, Masao Iwagami, Kaori Muto, Nobuyuki Ebihara, Masahiro Nakamura, Mitsuhiro Okano, Yasutsugu Akasaki, Yuichi Okumura, Takuma Ide, Shuko Nojiri, Masashi Nagao, Keiichi Fujimoto…
    Citation: Research Involvement and Engagement 2022 8:45
    Content type: Research Published on:

  36. Clinical Trials Units are encouraged to integrate Patient and Public Involvement (PPI) into all aspects of trial design, ... This research explored the induction and training of PPI Contributors joining trial ove...

    Authors: Emily C. Pickering, Bec Hanley, Philip Bell, Jacqui Gath, Patrick Hanlon, Robert Oldroyd, Richard Stephens and Conor D. Tweed
    Citation: Research Involvement and Engagement 2021 7:42
    Content type: Research article Published on:

  37. Patient and public involvement (PPI) is integral to research on patient safety...do PPI. For marginalised groups, remote working and ... . This editorial showcases three case examples of PPI with marginalised gro...

    Authors: Isabel Adeyemi, Caroline Sanders, Bie Nio Ong, Kelly Howells, Leah Quinlivan, Louise Gorman, Sally Giles, Mat Amp, Elizabeth Monaghan, Sumaira Naseem, Adam Pearson and Sudeh Cheraghi-Sohi
    Citation: Research Involvement and Engagement 2022 8:13
    Content type: Commentary Published on:

  38. The rapid transition to digital working, accelerated due to the response to the COVID-19 pandemic, has impacted the involvement of patients and public in research. This paper presents experiences of engaging in d...

    Authors: Mauricio Molinari-Ulate, Rebecca Woodcock, Isabelle Smith, Henriëtte G. van der Roest, Manuel A. Franco-Martín and Michael P. Craven
    Citation: Research Involvement and Engagement 2022 8:33
    Content type: Research Published on:

  39. Public and patient involvement (PPI) has been shown to have a positive ... , adequate examples describing how to operationalise effective PPI, especially in doctoral studies, are lacking. ... limited experience, ...

    Authors: Justine Tomlinson, Kristina Medlinskiene, V-Lin Cheong, Sarah Khan and Beth Fylan
    Citation: Research Involvement and Engagement 2019 5:23
    Content type: Review article Published on:

  40. Patient and public involvement (PPI) in research is very important, and ... analyses the experience of a research team using PPI, and makes recommendations on strengthening PPI in research.

    Authors: A. Howe, E. Mathie, D. Munday, M. Cowe, C. Goodman, J. Keenan, S. Kendall, F. Poland, S. Staniszewska and P. Wilson
    Citation: Research Involvement and Engagement 2017 3:1
    Content type: Research article Published on:

  41. Patient and public involvement (PPI) is increasingly recognised as important in research. Most PPI takes place face-to-face, but this ... research, we developed an online forum for PPI:

    Authors: Lisa Jane Brighton, Sophie Pask, Hamid Benalia, Sylvia Bailey, Marion Sumerfield, Jana Witt, Susanne de Wolf-Linder, Simon Noah Etkind, Fliss E. M. Murtagh, Jonathan Koffman and Catherine J. Evans
    Citation: Research Involvement and Engagement 2018 4:14
    Content type: Research article Published on:

  42. A small medical school research project entitled ‘PPI to strengthen clinical and population health research’...caused me to look at an entirely new field – that of Public and Patient Involvement (PPI). PPI is the...

    Authors: Joseph Lewis
    Citation: Research Involvement and Engagement 2020 6:20
    Content type: Letter Published on:

    The original article was published in Research Involvement and Engagement 2020 6:13

  43. In the UK, there has been a strong drive towards patient and public involvement (PPI) in health research. Its benefits include ... Organisational context can significantly influence the operationalisation of PPI....

    Authors: Joanne Evans and Stan (Constantina) Papoulias
    Citation: Research Involvement and Engagement 2020 6:12
    Content type: Research article Published on:

  44. The University College Dublin (UCD) Public and Patient Invovlement (PPI) ignite program is focused on embedding PPI in health and social care related research, ... training, professional practice and administrati...

    Authors: Éidín Ní Shé, Jennifer Cassidy, Carmel Davies, Aoife De Brún, Sarah Donnelly, Emma Dorris, Nikki Dunne, Karen Egan, Michel Foley, Mary Galvin, Mary Harkin, Martha Killilea, Thilo Kroll, Vanessa Lacey, Veronica Lambert, Sarah McLoughlin…
    Citation: Research Involvement and Engagement 2020 6:46
    Content type: Research article Published on:

  45. The active involvement of patients and the public in the design and delivery of health research has been increasingly encouraged, if not enforced. Knowledge of how this is realised in practice, especially where c...

    Authors: Jennifer Preston, Giovanni Biglino, Victoria Harbottle, Emma Dalrymple, Helen Stalford and Michael W. Beresford
    Citation: Research Involvement and Engagement 2023 9:61
    Content type: Methodology Published on:

  46. Although interest in Patient and Public Involvement in health-related research is growing, there seems to be a lack of guidance supporting researchers in deciding on methods and levels for Patient and Public I...

    Authors: Jeanette Finderup, Louise Engelbrecht Buur, Sarah Cecilie Tscherning, Annesofie Lunde Jensen, Anne Wilhøft Kristensen, Anne Poder Petersen, Bente Skovsby Toft, Gitte Susanne Rasmussen, Pernille Skovlund, Tina Wang Vedelø and Lotte Ørneborg Rodkjær
    Citation: Research Involvement and Engagement 2022 8:43
    Content type: Methodology Published on:

  47. The interest in patient and public involvement (PPI) in health research is increasing. However, the experience and knowledge of PPI throughout the entire research process and especially...

    Authors: Pernille Christiansen Skovlund, Berit Kjærside Nielsen, Henriette Vind Thaysen, Henrik Schmidt, Arnstein Finset, Kristian Ahm Hansen and Kirsten Lomborg
    Citation: Research Involvement and Engagement 2020 6:43
    Content type: Research article Published on:

  48. Participants and community representatives cited different motivations for getting involved in PROUD. Overall, participants were positive about their involvement; only two participants rated their experience unfa...

    Authors: Mitzy Gafos, Annabelle South, Bec Hanley, Elizabeth Brodnicki, Matthew Hodson, Sheena McCormack, T. Charles Witzel, Justin Harbottle and Claire Vale
    Citation: Research Involvement and Engagement 2020 6:13
    Content type: Research article Published on:

    The Letter to this article has been published in Research Involvement and Engagement 2020 6:20

  49. Patient and Public Involvement (PPI) is the active partnership between researchers, ... laypeople in the process of creating research. PPI in stroke aphasia research aims to ensure ... of people with aphasia in s...

    Authors: Marina Charalambous, Alexia Kountouri, Phivos Phylactou, Ioanna Triantafyllidou, Jean-Marie Annoni and Maria Kambanaros
    Citation: Research Involvement and Engagement 2022 8:48
    Content type: Research article Published on:

  50. The international literature on patient and public involvement (PPI) in research covers a wide range of ... patients/public can play; assessing impact of PPI and recommendations for good PPI practice. One area of...

    Authors: Clare Jinks, Pam Carter, Carol Rhodes, Robert Taylor, Roger Beech, Krysia Dziedzic, Steven Blackburn, Rhian Hughes and Bie Nio Ong
    Citation: Research Involvement and Engagement 2016 2:1
    Content type: Methodology Published on:
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Research Involvement and Engagement

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