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  1. PLM is an online platform that provides tools for individuals to track their health and connect with other patients and while PLM has invited patients to participate in various research projects throughout the...

    Authors: Meaghan Bradley, Julia Braverman, Magdalena Harrington and Paul Wicks
    Citation: Research Involvement and Engagement 2016 2:33
  2. Paediatric Intensive Care (PIC) provides care to extremely ill children. Research in this area can be difficult because children are often too sick to discuss being involved in a study and parents are too upse...

    Authors: J. C. Menzies, K. P. Morris, H. P. Duncan and J. F. Marriott
    Citation: Research Involvement and Engagement 2016 2:32
  3. The aim of this project was to find out the priorities for research that could improve fundamental care. ‘Fundamental care’ covers all aspects of basic care in hospital wards, such as helping with core physica...

    Authors: Jane Ball, Claire Ballinger, Anya De Iongh, Chiara Dall’Ora, Sally Crowe and Peter Griffiths
    Citation: Research Involvement and Engagement 2016 2:31
  4. Food allergy is a serious public health problem in Canada and other high-income countries, as it is potentially life threatening and severely impacts the quality of life for individuals and their families. Yet...

    Authors: Jenna Dixon, Susan J. Elliott and Ann E. Clarke
    Citation: Research Involvement and Engagement 2016 2:27
  5. There are well documented benefits to involving patients and the public in research. However, there is little research published about their involvement in large complex studies such as cohort multiple Randomi...

    Authors: Anne Heaven, Lesley Brown, Marilyn Foster and Andrew Clegg
    Citation: Research Involvement and Engagement 2016 2:30
  6. There is a consensus that patients and the public should be involved in research in a meaningful way. However, to date, lay people have been mostly involved in developing research ideas and commenting on patie...

    Authors: S. Garfield, S. Jheeta, F. Husson, A. Jacklin, A. Bischler, C. Norton and B. D. Franklin
    Citation: Research Involvement and Engagement 2016 2:29
  7. For the elderly to get the care and services they need, they may need to make the difficult decision about staying in their home or moving to another home. Many other people may be involved in their care too (...

    Authors: Mirjam M. Garvelink, Julie Emond, Matthew Menear, Nathalie Brière, Adriana Freitas, Laura Boland, Maria Margarita Becerra Perez, Louisa Blair, Dawn Stacey and France Légaré
    Citation: Research Involvement and Engagement 2016 2:26
  8. This commentary article describes three interactive workshops that explored how patients can contribute to decisions about what outcomes are measured in clinical trials across the world. Outcomes like quality ...

    Authors: Bridget Young and Heather Bagley
    Citation: Research Involvement and Engagement 2016 2:25
  9. The article analyses the process of securing permissions for members of the public (we refer to them as “research partners”) and academics involved in a qualitative study of public involvement in research (PIR...

    Authors: Vito Laterza, David Evans, Rosemary Davies, Christine Donald and Cathy Rice
    Citation: Research Involvement and Engagement 2016 2:24
  10. The paper discusses engaging older adults living with frailty and their family caregivers. Frailty is a state that puts an individual at a higher risk for poor health outcomes and death. Understanding whether a p...

    Authors: Jayna Holroyd-Leduc, Joyce Resin, Lisa Ashley, Doris Barwich, Jacobi Elliott, Paul Huras, France Légaré, Megan Mahoney, Alies Maybee, Heather McNeil, Daryl Pullman, Richard Sawatzky, Paul Stolee and John Muscedere
    Citation: Research Involvement and Engagement 2016 2:23
  11. Involving young people in research about their health is increasingly recognized as being important to make sure that research is focused more on the needs of young people. However, at present, ideas about wha...

    Authors: Suzanne Parsons, Kate Dack, Bella Starling, Wendy Thomson and Janet E. McDonagh
    Citation: Research Involvement and Engagement 2016 2:22
  12. In Canada, the CADTH Common Drug Review helps ensure that scarce health care resources are used to fund the most effective drugs. Clinicians, researchers, payers, and patients all have important, but potential...

    Authors: Sarah Berglas, Lauren Jutai, Gail MacKean and Laura Weeks
    Citation: Research Involvement and Engagement 2016 2:21
  13. The PROMPT study is a community-based research project designed to understand the factors which affect smoking as well as ways to manage, reduce and quit smoking among people who use drugs in Ottawa. There is ...

    Authors: Smita Pakhale, Tina Kaur, Kelly Florence, Tiffany Rose, Robert Boyd, Joanne Haddad, Donna Pettey, Wendy Muckle and Mark Tyndall
    Citation: Research Involvement and Engagement 2016 2:20
  14. Patient safety is a growing research area. However, although patients and the public are increasingly involved in clinical research, there is little guidance on how best to involve patients in patient safety r...

    Authors: Dominic Furniss, Ioanna Iacovides, Imogen Lyons, Ann Blandford and Bryony Dean Franklin
    Citation: Research Involvement and Engagement 2016 2:19
  15. Patients and researchers must work together to improve the relevance and quality of research. Qualitative systematic reviews synthesise findings from a range of published qualitative studies to identify common...

    Authors: Kerin Bayliss, Bella Starling, Karim Raza, Eva C. Johansson, Codruta Zabalan, Susan Moore, Diana Skingle, Tiina Jasinski, Susan Thomas and Rebecca Stack
    Citation: Research Involvement and Engagement 2016 2:18
  16. In Australia, since 2009, the Consumer and Community Involvement Program (formerly the Consumer and Community Participation Program) has developed and run workshops to help people working in health and medical...

    Authors: Anne McKenzie, Kirsten Alpers, Jane Heyworth, Cindy Phuong and Bec Hanley
    Citation: Research Involvement and Engagement 2016 2:16
  17. Funders of research are increasingly requiring researchers to involve patients and the public in their research. Patient and public involvement (PPI) in research can potentially help researchers make sure that...

    Authors: Heather J. Bagley, Hannah Short, Nicola L. Harman, Helen R. Hickey, Carrol L. Gamble, Kerry Woolfall, Bridget Young and Paula R. Williamson
    Citation: Research Involvement and Engagement 2016 2:15
  18. The behaviour of people with diabetes (e.g. taking medication) and the behaviour of doctors and other healthcare professionals (e.g. checking patients’ blood sugar) are important. Our research group wanted to ...

    Authors: Jennifer Mc Sharry, Milou Fredrix, Lisa Hynes and Molly Byrne
    Citation: Research Involvement and Engagement 2016 2:14
  19. The James Lind Alliance (JLA) brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise shared uncertainties about the effects of treatment. The JLA eme...

    Authors: Mary Madden and Richard Morley
    Citation: Research Involvement and Engagement 2016 2:12
  20. The National Institute for Health Research (NIHR) Research Design Service (RDS) for Yorkshire and Humber has been running a public involvement funding scheme since 2008. This scheme awards researchers a small ...

    Authors: Susan Baxter, Delia Muir, Louise Brereton, Christine Allmark, Rosemary Barber, Lydia Harris, Brian Hodges, Samaira Khan and Wendy Baird
    Citation: Research Involvement and Engagement 2016 2:13
  21. It is recommended that research studies are carried out with or by patients and the public through their involvement from the beginning and in as many stages as possible (known as PPI). Some studies formally i...

    Authors: Heather Morgan, Gill Thomson, Nicola Crossland, Fiona Dykes and Pat Hoddinott
    Citation: Research Involvement and Engagement 2016 2:7
  22. Health technology appraisal involves reviewing the findings from clinical trials and economic data to produce guidance on how health technology should be used. This task is carried out by appraisal committees ...

    Authors: Kristina Staley and Caroline Doherty
    Citation: Research Involvement and Engagement 2016 2:4
  23. People with osteoarthritis desire high quality care, support and information. However, the quality of care for people with OA in general practice is not routinely collected. Quality Indicators can be used to b...

    Authors: Steven Blackburn, Adele Higginbottom, Robert Taylor, Jo Bird, Nina Østerås, Kåre Birger Hagen, John J. Edwards, Kelvin P. Jordan, Clare Jinks and Krysia Dziedzic
    Citation: Research Involvement and Engagement 2016 2:5
  24. The importance of citizen involvement in healthcare research and planning has been widely recognized. There is however, a lack of understanding of how best to engage older adults, Canada's fastest growing segm...

    Authors: Heather McNeil, Jacobi Elliott, Kelsey Huson, Jessica Ashbourne, George Heckman, Jennifer Walker and Paul Stolee
    Citation: Research Involvement and Engagement 2016 2:10
  25. In the United Kingdom (UK), official bodies such as the Department of Health and research funders such as the National Institute for Health Research support and encourage lay involvement in all stages of resea...

    Authors: Carole Mockford, Matt Murray, Kate Seers, Jan Oyebode, Richard Grant, Sue Boex, Sophie Staniszewska, Yvonne Diment, Jim Leach, Uma Sharma, Rosemary Clarke and Rashida Suleman
    Citation: Research Involvement and Engagement 2016 2:8
  26. Engaging patients in research studies is becoming more common because it makes research and its results more relevant for patients. It is important to understand the best ways for patients and researchers to w...

    Authors: Dianne S. Johnson, Mary T. Bush, Susan Brandzel and Karen J. Wernli
    Citation: Research Involvement and Engagement 2016 2:6
  27. A one day public engagement workshop was held to focus on the priorities of older people about research and practice in health and social care. Seventy-five older people from the general public and a variety o...

    Authors: Dalal Alsaeed, Nathan Davies, Julia Fiona-Maree Gilmartin, Elizabeth Jamieson, Kalpa Kharicha, Ann E. M. Liljas, Bahijja Tolulope Raimi-Abraham, Janine Aldridge, Felicity J. Smith, Kate Walters and Mine Orlu Gul
    Citation: Research Involvement and Engagement 2016 2:2
  28. The international literature on patient and public involvement (PPI) in research covers a wide range of issues, including active lay involvement throughout the research cycle; roles that patients/public can pl...

    Authors: Clare Jinks, Pam Carter, Carol Rhodes, Robert Taylor, Roger Beech, Krysia Dziedzic, Steven Blackburn, Rhian Hughes and Bie Nio Ong
    Citation: Research Involvement and Engagement 2016 2:1
  29. Involving patients and the public in research helps to ensure that research remains relevant, and has an impact on the people it aims to benefit. Funding bodies now require patients and the public to be involv...

    Authors: Lisa M. Andrews, Helen Allen, Zoë A. Sheppard, Guy Baylis and Thomas W. Wainwright
    Citation: Research Involvement and Engagement 2015 1:13
  30. Myalgic encephalitis (M.E.) is a common condition, the cause of which is not known and there are no treatments available. In this study the national patient support group Action for M.E. sought the opinions of...

    Authors: Nicola Childs, Lisa Robinson, Sonya Chowdhury, Clare Ogden and Julia L. Newton
    Citation: Research Involvement and Engagement 2015 1:11
  31. Within health services research in the UK, there has been growing interest in evidence-based medicine (EBM) and patient and public involvement (PPI) in research. These two movements have a common goal of impro...

    Authors: Andy Gibson, Kate Boddy, Kath Maguire and Nicky Britten
    Citation: Research Involvement and Engagement 2015 1:10
  32. Public health research sometimes uses members of communities as researchers. These are called Community Researchers. The advantage of using Community Researchers is that it enables people who live in communiti...

    Authors: Sarah Salway, Punita Chowbey, Elizabeth Such and Beverly Ferguson
    Citation: Research Involvement and Engagement 2015 1:9
  33. There is a consensus that patients and the public should be involved in research in a meaningful way. To date, lay people have been mostly involved in developing research ideas and commenting on patient inform...

    Authors: Sara Garfield, Seetal Jheeta, Ann Jacklin, Anna Bischler, Christine Norton and Bryony D. Franklin
    Citation: Research Involvement and Engagement 2015 1:8
  34. Healthcare workers want to listen more to patients and their carers in all sorts of areas of healthcare. This can include choosing topics for medical research. We looked at how patients and carers have helped ...

    Authors: R. Snow, J C Crocker and S. Crowe
    Citation: Research Involvement and Engagement 2015 1:7
  35. This commentary talks about patient involvement in one of the biggest EU projects to date—U-BIOPRED. It describes how people and carers of people with asthma have been able to develop and drive their input and...

    Authors: David Supple, Amanda Roberts, Val Hudson, Sarah Masefield, Neil Fitch, Malayka Rahmen, Breda Flood, Willem de Boer, Pippa Powell and Scott Wagers
    Citation: Research Involvement and Engagement 2015 1:5

    The Erratum to this article has been published in Research Involvement and Engagement 2015 1:12

  36. Biobanks are collections of donations of biological material (DNA, cells, tissue etc.) and related data which are very valuable for research into human diseases. A variety of biobanks exist for example within ...

    Authors: Derick Mitchell, Jan Geissler, Alison Parry-Jones, Hans Keulen, Doris C. Schmitt, Rosaria Vavassori and Balwir Matharoo-Ball
    Citation: Research Involvement and Engagement 2015 1:4
  37. There is some evidence that there is a mismatch between what patients and health professionals want to see researched and the research that is actually done. The James Lind Alliance (JLA) research Priority Set...

    Authors: Sally Crowe, Mark Fenton, Matthew Hall, Katherine Cowan and Iain Chalmers
    Citation: Research Involvement and Engagement 2015 1:2

    The Erratum to this article has been published in Research Involvement and Engagement 2015 1:14

  38. This editorial introduces the new, online, open-access journal Research Involvement and Engagement. The journal considers manuscripts on any aspect of the engagement or involvement of patients, carers or members ...

    Authors: Richard Stephens and Sophie Staniszewska
    Citation: Research Involvement and Engagement 2015 1:1

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