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  1. Historically, disabled people have been marginalised in research that traditionally adopted a medical model perspective. Since the 1970’s, there has been a shift from research on disabled people to research wi...

    Authors: Lorna Montgomery, Berni Kelly, Ursula Campbell, Gavin Davidson, Leanne Gibson, Louise Hughes, Jadzia Menham, Linda McKendry, Leslie-Anne Newton, Alex Parkinson, Ethan Redmond, Joseph Turnbull, Paul Webb and Lisamarie Wood
    Citation: Research Involvement and Engagement 2022 8:64
  2. The effects of stakeholder engagement, particularly in comparative effectiveness trials, have not been widely reported. In 2014, eight comparative effectiveness studies targeting African Americans and Hispanic...

    Authors: Tiffany Dy, Winifred J. Hamilton, C. Bradley Kramer, Andrea Apter, Jerry A. Krishnan, James W. Stout, Stephen J. Teach, Alex Federman, John Elder, Tyra Bryant-Stephens, Rebecca J. Bruhl, Shawni Jackson and Kaharu Sumino
    Citation: Research Involvement and Engagement 2022 8:63
  3. Involvement of young partners by experience in research is on the rise and becoming expected practice. However, literature on how to promote equitable and meaningful involvement of young people is scarce. The ...

    Authors: Linda Nguyen, Bente van Oort, Hanae Davis, Eline van der Meulen, Claire Dawe-McCord, Anita Franklin, Jan Willem Gorter, Christopher Morris and Marjolijn Ketelaar
    Citation: Research Involvement and Engagement 2022 8:62
  4. Globally many older persons with dementia are living at home to maintain independence within the community. As older persons with dementia transition from early to moderate or advanced stages of dementia they ...

    Authors: Marie-Lee Yous, Jenny Ploeg, Sharon Kaasalainen and Carrie McAiney
    Citation: Research Involvement and Engagement 2022 8:61
  5. Including youth with disabilities and their families as partners in childhood disability research is imperative but can be challenging to do in an authentic and meaningful way. Simulation allows individuals to...

    Authors: Samantha K. Micsinszki, Nadia L. Tanel, Julia Kowal, Gillian King, Dolly Menna-Dack, Angel Chu and Michelle Phoenix
    Citation: Research Involvement and Engagement 2022 8:60
  6. We aimed to contribute to developing practical guidance for implementing person-centred quality indicators (PC-QIs) for primary care in Alberta, Canada. As a first step in this process, we conducted stakeholde...

    Authors: Kimberly Manalili, Catherine M. Scott, Brenda Hemmelgarn, Maeve O’Beirne, Allan L. Bailey, Michel K. Haener, Cyrene Banerjee, Sue P. Peters, Mirella Chiodo, Fariba Aghajafari and Maria J. Santana
    Citation: Research Involvement and Engagement 2022 8:59
  7. This paper considers remote working in patient public involvement and engagement (PPIE) in health and social care research. With the advent of the Covid-19 pandemic and associated lock-down measures in the UK ...

    Authors: Elisa Jones, Lucy Frith, Mark Gabbay, Naheed Tahir, Muhammad Hossain, Mark Goodall, Katie Bristow and Shaima Hassan
    Citation: Research Involvement and Engagement 2022 8:58
  8. Youth violence is a global public health issue and the highest rates are reported in Low and Middle-Income Countries (LMICs). Higher rates of youth violence are reported in Sri Lanka as well. Students who fail...

    Authors: Nadeeka Rathnayake, Kalpani Abhayasinghe, Jayamal De Silva and G. N. Duminda Guruge
    Citation: Research Involvement and Engagement 2022 8:57
  9. Early childhood is a critical period of development for infants, young children, and their families. An array of services, programs, and interventions exist to support families during this life stage, often de...

    Authors: Erica Koopmans, Lisa Provencher, Lauren Irving and Caroline Sanders
    Citation: Research Involvement and Engagement 2022 8:56
  10. Patient engagement in research consists in involving patients as partners across the research cycle. This practice has quickly become an international standard, with funding bodies actively encouraging it. As ...

    Authors: Jonathan Lauzon-Schnittka, Sophie Audette-Chapdelaine, Denis Boutin, Catherine Wilhelmy, Anne-Marie Auger and Magaly Brodeur
    Citation: Research Involvement and Engagement 2022 8:55
  11. Older adults have been disproportionately impacted by the COVID-19 pandemic. COVID-19 restrictions such as stay at home orders and physical distancing measures have been implemented to reduce older adults’ ris...

    Authors: Claire Adams, Paul Albert, Tim Benson, Anne Cordingley, Barbara Daniels, Noreen Fynn, Mary Gurgone, Chris Jeffery, Ann White and Natalie Strobel
    Citation: Research Involvement and Engagement 2022 8:54
  12. Patients play a central role in nursing preceptorship relationships, a professional educational relationship between a staff nurse and student nurse that is grounded in providing patient care. Yet the patient ...

    Authors: Philip Hardie, Aidan Murray, Suzi Jarvis and Catherine Redmond
    Citation: Research Involvement and Engagement 2022 8:53
  13. In the COVID-19 pandemic, numerous researchers postponed their patient and public involvement (PPI) activities. This was mainly due to assumptions on patients’ willingness and skills to participate digitally. ...

    Authors: Jennifer Engler, Franziska Brosse, Truc Sophia Dinh, Astrid-Alexandra Klein, Maria-Sophie Brueckle, Jenny Petermann, Christiane Muth, Karola Mergenthal, Marjan van den Akker and Karen Voigt
    Citation: Research Involvement and Engagement 2022 8:52
  14. The Canadian Strategy for Patient-Oriented Research supports the inclusion of patients as partners throughout the research process. Purposeful and meaningful engagement of patient partners after stroke can pre...

    Authors: Alyson Kwok, Deacon Cheung, Maysyn Gordon, Evan Mudryk and Patricia J. Manns
    Citation: Research Involvement and Engagement 2022 8:51
  15. A key component of patient-oriented research is the engagement of patients as partners in the design and conduct of health research. While there is now national infrastructure and networks to support the engag...

    Authors: Stuart G. Nicholls, Grace Fox, Zarah Monfaredi, Evelyn Poole, Chantelle Garritty, Alies Maybee, Justin Presseau, Beverley Shea and Dean A. Fergusson
    Citation: Research Involvement and Engagement 2022 8:50
  16. Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful par...

    Authors: Maria J. Santana, D’Arcy Duquette, Paul Fairie, Ingrid Nielssen, Sumedh Bele, Sadia Ahmed, Tiffany Barbosa and Sandra Zelinsky
    Citation: Research Involvement and Engagement 2022 8:49
  17. Patient and Public Involvement (PPI) is the active partnership between researchers, patients and laypeople in the process of creating research. PPI in stroke aphasia research aims to ensure equal opportunities...

    Authors: Marina Charalambous, Alexia Kountouri, Phivos Phylactou, Ioanna Triantafyllidou, Jean-Marie Annoni and Maria Kambanaros
    Citation: Research Involvement and Engagement 2022 8:48
  18. Conducting mixed methods research is critical for healthcare researchers to understand attitudes, behaviors, and experiences on health-related topics, such as vaccine acceptance. As the COVID-19 pandemic has m...

    Authors: Lisa Shea, Jennifer Bushen, Nina Ahmad, Gabrielle Geonnotti, Joy LaMori, Stephanie Terrey, Pepa Gonzalez and Jill Shuman
    Citation: Research Involvement and Engagement 2022 8:47
  19. Partnering with patients and family members affected by cancer is essential for meaningful research, public engagement and outreach, and advocacy activities.

    Authors: Sevtap Savas, Holly Etchegary, Teri Stuckless, Cindy Whitten, Jason Wiseman, Derrick Bishop, John King, Janine Cutting and Darrell Peddle
    Citation: Research Involvement and Engagement 2022 8:46
  20. Smartphones are being increasingly used for research owing to their multifunctionality and flexibility, and crowdsourced research using smartphone applications (apps) is effective in the early detection and ma...

    Authors: Kenta Fujio, Takenori Inomata, Kumiko Fujisawa, Jaemyoung Sung, Masahiro Nakamura, Masao Iwagami, Kaori Muto, Nobuyuki Ebihara, Masahiro Nakamura, Mitsuhiro Okano, Yasutsugu Akasaki, Yuichi Okumura, Takuma Ide, Shuko Nojiri, Masashi Nagao, Keiichi Fujimoto…
    Citation: Research Involvement and Engagement 2022 8:45
  21. Knowledge about the specific engagement activities pursued and associated impacts of patient engagement in research in Canada remains nascent. This study aimed to describe engagement activities and perceived i...

    Authors: Anna Maria Chudyk, Roger Stoddard, Nicola McCleary, Todd A. Duhamel, Carolyn Shimmin, Serena Hickes and Annette S. H. Schultz
    Citation: Research Involvement and Engagement 2022 8:44
  22. Although interest in Patient and Public Involvement in health-related research is growing, there seems to be a lack of guidance supporting researchers in deciding on methods and levels for Patient and Public I...

    Authors: Jeanette Finderup, Louise Engelbrecht Buur, Sarah Cecilie Tscherning, Annesofie Lunde Jensen, Anne Wilhøft Kristensen, Anne Poder Petersen, Bente Skovsby Toft, Gitte Susanne Rasmussen, Pernille Skovlund, Tina Wang Vedelø and Lotte Ørneborg Rodkjær
    Citation: Research Involvement and Engagement 2022 8:43
  23. Despite a movement toward the inclusion of patient partners or advisors as part of the research team in all funded studies, few publications have discussed patient engagement from the patient partners’ perspec...

    Authors: Suzanne Madison, Alex D. Colon-Moya, Wilfredo Morales-Cosme, Margie Lorenzi, Aracelis Diaz, Bridget Hickson, Kathy Monteiro, Alexander Muniz Ruiz, Addie Perez, Richard Redondo, Dennis Reid, Janet Robles, Marsha Santiago, Opal Thompson, Joyce Wade, Mary White…
    Citation: Research Involvement and Engagement 2022 8:42
  24. In 2017, the British Columbia (Canada) SUPPORT (SUpport for People and Patient-Oriented Research) Unit created six methods clusters to advance methodologies in patient and public oriented research (POR). The k...

    Authors: Martha L. P. MacLeod, Jenny Leese, Leana Garraway, Nelly D. Oelke, Sarah Munro, Sacha Bailey, Alison M. Hoens, Sunny Loo, Ana Valdovinos, Ursula Wick, Peter Zimmer and Linda C. Li
    Citation: Research Involvement and Engagement 2022 8:41
  25. Community engagement or community involvement in Aboriginal health research is a process that involves partnering, collaborating and involving Aboriginal and Torres Strait Islander people or potential research...

    Authors: Penny O’Brien, Ryan Prehn, Naz Rind, Ivan Lin, Peter F. M. Choong, Dawn Bessarab, Juli Coffin, Toni Mason, Michelle M. Dowsey and Samantha Bunzli
    Citation: Research Involvement and Engagement 2022 8:40
  26. Public Participation Involvement Engagement (PPIE) is now strongly encouraged across health policy and research. Coproduction, although linked to PPIE is a way of working that can be applied to work collaborat...

    Authors: Aamnah Rahman, Salma Nawaz, Eisha Khan and Shahid Islam
    Citation: Research Involvement and Engagement 2022 8:39
  27. Authors: Marita Hennessy, Laura Linehan, Rebecca Dennehy, Declan Devane, Rachel Rice, Sarah Meaney and Keelin O’Donoghue
    Citation: Research Involvement and Engagement 2022 8:38

    The original article was published in Research Involvement and Engagement 2022 8:18

  28. Digital contact tracing and exposure notification apps have quickly emerged as a potential solution to achieve timely and effective contact tracing for the SARS-CoV-2 virus. Nonetheless, their actual uptake re...

    Authors: Esli Osmanlliu, Jesseca Paquette, Annie-Danielle Grenier, Paul Lewis, Marie-Eve Bouthillier, Sylvain Bédard and Marie-Pascale Pomey
    Citation: Research Involvement and Engagement 2022 8:37
  29. Patient and Public Involvement is most usually framed in the context of designing, conducting and/or disseminating research. Participatory methods such as Experience-Based Co-Design (EBCD) further allow servic...

    Authors: Mary Anne Lagmay Tanay, Jo Armes, Catherine Oakley, Lesley Sage, Deb Tanner, Jose Roca, Liz Bryson, Barbara Greenall, Lauren Urwin, Toni Wyatt and Glenn Robert
    Citation: Research Involvement and Engagement 2022 8:36
  30. The Tele- Exercise and Multiple Sclerosis (TEAMS) study, funded by the Patient Centered Outcome Research Institute (PCORI), is a pragmatic, cluster randomized controlled trial aimed at comparing the effectiven...

    Authors: Tracy Flemming Tracy, Hui-Ju Young, Byron Lai, Beverly Layton, Dolly Stokes, Mark Fry, Tapan Mehta, Emily S. Riser and James Rimmer
    Citation: Research Involvement and Engagement 2022 8:35
  31. Those whose lives are most directly impacted by health care—patients, caregivers, and frontline staff—are ideally situated to improve patient health care services and care quality. Despite a proliferation of l...

    Authors: Sarah Davis, Nancy Pandhi, Barbara Warren, Njeri Grevious, Madison Crowder, Haley Ingersoll, Elizabeth Perry, Andrew Sussman and Rachel Grob
    Citation: Research Involvement and Engagement 2022 8:34
  32. The rapid transition to digital working, accelerated due to the response to the COVID-19 pandemic, has impacted the involvement of patients and public in research. This paper presents experiences of engaging i...

    Authors: Mauricio Molinari-Ulate, Rebecca Woodcock, Isabelle Smith, Henriëtte G. van der Roest, Manuel A. Franco-Martín and Michael P. Craven
    Citation: Research Involvement and Engagement 2022 8:33
  33. Surgery is one of the most common patient experiences in the health care system. Yet, efforts to engage patients in surgical safety research have not matched those of other health care fields. This is a critic...

    Authors: Cole Etherington, Maxime Lê, Laurie Proulx and Sylvain Boet
    Citation: Research Involvement and Engagement 2022 8:32
  34. There is currently no standardised way to share information across disciplines about initiatives, including fields such as health, environment, basic science, manufacturing, media and international development...

    Authors: Jack S. Nunn, Thomas Shafee, Steven Chang, Richard Stephens, Jim Elliott, Sandy Oliver, Denny John, Maureen Smith, Neil Orr, Jennifer Preston, Josephine Borthwick, Thijs van Vlijmen, James Ansell, Francois Houyez, Maria Sharmila Alina de Sousa, Roan D. Plotz…
    Citation: Research Involvement and Engagement 2022 8:31
  35. Including the lived experience of patients in research is important to improve the quality and outcomes of cancer studies. It is challenging to include adolescents and young adults (AYAs) cancer patients in st...

    Authors: Camila Rosalinde van Ham, Vivian Wilhelmina Gerarda Burgers, Sophia Helena Eva Sleeman, Annemiek Dickhout, Niels Christiaan Gerardus Laurus Harthoorn, Eveliene Manten-Horst, Mies Christina van Eenbergen and Olga Husson
    Citation: Research Involvement and Engagement 2022 8:30
  36. The objective of this paper is to describe the activities, challenges and mitigation strategies, lessons learned and reflections on the importance of engagement from the first year of the Canadian Consortium o...

    Authors: Ellen Snowball, Rosette Fernandez Loughlin, Heather Eagleson, Karen Myers Barnett, Emily McLellan, Denis O’Connor, Catherine Kelly, Christine Thelker, Katherine S. McGilton and Jennifer Bethell
    Citation: Research Involvement and Engagement 2022 8:28
  37. Scoping reviews of health research are increasing in popularity. However, only a minority of scoping reviews in this sector engage patients and caregivers as co-producers of the research. Despite developments ...

    Authors: Nebojša Oravec, Caroline Monnin, April Gregora, Brian Bjorklund, Mudra G. Dave, Annette S. H. Schultz and Anna M. Chudyk
    Citation: Research Involvement and Engagement 2022 8:27
  38. The Research Engagement Survey Tool (REST) was developed to examine the level of partner (e.g., patients, caregivers, advocates, clinicians, community members) engagement in research studies. The REST is align...

    Authors: Melody S. Goodman, Nicole Ackermann, Zoé Haskell-Craig, Sherrill Jackson, Deborah J. Bowen and Vetta L. Sanders Thompson
    Citation: Research Involvement and Engagement 2022 8:26
  39. Patient engagement is increasingly being recognized as a critical component of health research; however, institutional models for building infrastructure and capacity for patient engagement in research are lim...

    Authors: Shelley Vanderhout, Stuart Nicholls, Zarah Monfaredi, Claudia Hampel, Lynn Ashdown, Maxime Bilodeau, Susan Rich, Beverley Shea and Dean Fergusson
    Citation: Research Involvement and Engagement 2022 8:25
  40. The overall aim of this program of research is to assess when/how patient partners are compensated financially for their contributions to health research. The research program consists of three studies to addr...

    Authors: Grace Fox, Dean A. Fergusson, Stuart G. Nicholls, Maureen Smith, Dawn Stacey and Manoj M. Lalu
    Citation: Research Involvement and Engagement 2022 8:24
  41. Peer-reviewed scientific publications and congress abstracts are typically written by scientists for specialist audiences; however, patients and other non-specialists are understandably interested in the poten...

    Authors: Laura Dormer, Thomas Schindler, Lauri Arnstein Williams, Dawn Lobban, Sheila Khawaja, Amanda Hunn, Daniela Luzuriaga Ubilla, Ify Sargeant and Anne-Marie Hamoir
    Citation: Research Involvement and Engagement 2022 8:23
  42. Europe and North America are in the grips of a devastating overdose crisis. People who use substances often feel unsafe to access healthcare due to fears of stigma, blame, judgement, poor treatment, or other r...

    Authors: Bernadette Pauly, Ginger Sullivan, Dakota Inglis, Fred Cameron, Jack Phillips, Conor Rosen, Bill Bullock, Jennifer Cartwright, Taylor Hainstock, Cindy Trytten and Karen Urbanoski
    Citation: Research Involvement and Engagement 2022 8:22
  43. There is a growing consensus among scholars, national governments, and intergovernmental organisations of the need to involve the public in decision-making around the use of artificial intelligence (AI) in soc...

    Authors: Francis McKay, Bethany J. Williams, Graham Prestwich, Darren Treanor and Nina Hallowell
    Citation: Research Involvement and Engagement 2022 8:21
  44. ‘Getting Involved in Research’ was co-created and delivered by a multi-organisational group to provide an accessible introduction to research for those with lived experience of health and social care services.

    Authors: Carolyn Blair, Paul Best, Patricia Burns, Anne Campbell, Gavin Davidson, Joe Duffy, Anne Johnston, Berni Kelly, Campbell Killick, Denise Mac Dermott, Alan Maddock, Claire Jane McCartan, Paula McFadden, Anne McGlade, Lorna Montgomery, Sonia Patton…
    Citation: Research Involvement and Engagement 2022 8:20
  45. Considering the interdisciplinary role dental staff can play in addressing overweight and obesity in childhood, this study aimed to codesign guideline implementation strategies for children’s growth assessment...

    Authors: Amy Ruth Villarosa, Della Maneze, Lucie Michelle Ramjan, Ariana Kong and Ajesh George
    Citation: Research Involvement and Engagement 2022 8:19
  46. Standardised care pathways tailored to women/couples who experience recurrent miscarriage are needed; however, clinical practice is inconsistent and poorly organised. In this paper, we outline our processes an...

    Authors: Marita Hennessy, Laura Linehan, Rebecca Dennehy, Declan Devane, Rachel Rice, Sarah Meaney and Keelin O’Donoghue
    Citation: Research Involvement and Engagement 2022 8:18

    The Publisher Correction to this article has been published in Research Involvement and Engagement 2022 8:38

  47. Authors: Rebecca Foster, Hannah Carver, Jason Wallace, Alex Dunedin, Stan Burridge, Philip Foley, Bernie Pauly and Tessa Parkes
    Citation: Research Involvement and Engagement 2022 8:17

    The original article was published in Research Involvement and Engagement 2021 7:82

  48. The English schools-based human papillomavirus (HPV) vaccination programme is routinely offered to all young people aged 12–13 years, to prevent cancers affecting the cervix, vulva, vagina, penis, anus and mou...

    Authors: Harriet Fisher, Tracey Chantler, Adam Finn, Joanna Kesten, Matthew Hickman, Louise Letley, Sandra Mounier-Jack, Clare Thomas, Katie Worthington, Julie Yates and Suzanne Audrey
    Citation: Research Involvement and Engagement 2022 8:16
  49. Authors: Jane Taylor, Sjouke Dekker, Diny Jurg, Jon Skandsen, Maureen Grossman, Anne-Karien Marijnissen, Christoph Ladel, Ali Mobasheri, Jon Larkin, Harrie Weinans and Irene Kanter-Schlifke
    Citation: Research Involvement and Engagement 2022 8:15

    The original article was published in Research Involvement and Engagement 2021 7:24

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