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  1. Research article

    Forced migrants involved in setting the agenda and designing research to reduce impacts of complex emergencies: combining Swarm with patient and public involvement

    The UK’s National Institute for Health Research (NIHR) Health Protection Research Unit in Emergency Preparedness and Response was asked to undertake research on how to reduce the impact of complex national/int...

    Julii Suzanne Brainard, Enana Al Assaf, Judith Omasete, Steve Leach, Charlotte C. Hammer and Paul R. Hunter

    Research Involvement and Engagement 2017 3:23

    Published on: 6 November 2017

  2. Research article

    Parents’ perceptions of reasons for excess weight loss in obese children: a peer researcher approach

    This study reports on the process of conducting participatory research by training peer researchers to conduct interviews and analyse data collected with parents of overweight children. The methodology was cho...

    Fiona Gillison, Geraldine Cooney, Valerie Woolhouse, Angie Davies, Fiona Dickens and Penny Marno

    Research Involvement and Engagement 2017 3:22

    Published on: 1 November 2017

  3. Research article

    Formation of a type 1 diabetes young adult patient and public involvement panel to develop a health behaviour change intervention: the D1 Now study

    Many young adults with type 1 diabetes (T1D) find it hard to control their blood glucose levels. With lots of things going on in their lives, their diabetes is often not the most important thing to them. That ...

    Mary Clare O’Hara, Áine Cunningham, Cameron Keighron, Gary Allen, Antony Caulfield, Ciara Duffy, Michelle Long, Madeleine Mallon, Monica Mullins, Garret Tonra, Sarah Simkin, Lisa Hynes, Máire O’Donnell, Molly Byrne and Sean F Dinneen

    Research Involvement and Engagement 2017 3:21

    Published on: 23 October 2017

  4. Research article

    Understanding Plain English summaries. A comparison of two approaches to improve the quality of Plain English summaries in research reports

    There is a need for the authors of research reports to be able to communicate their work clearly and effectively to readers who are not familiar with the research area. The National Institute for Health Resear...

    Emma Kirkpatrick, Wendy Gaisford, Elaine Williams, Elizabeth Brindley, Doreen Tembo and David Wright

    Research Involvement and Engagement 2017 3:17

    Published on: 9 October 2017

  5. Commentary

    The impact of involvement on researchers: a learning experience

    The impacts of involvement in research are often described in terms of the difference made to the research, the people involved and less frequently the researchers. This paper focuses on the researchers’ exper...

    Kristina Staley, Isabelle Abbey-Vital and Claire Nolan

    Research Involvement and Engagement 2017 3:20

    Published on: 18 September 2017

  6. Research article

    Using the nominal group technique to involve young people in an evidence synthesis which explored ‘risk’ in inpatient mental healthcare

    We conducted a review of research on the topic of ‘risk’ in hospital based mental health care for young people aged 11-18. We wanted to include a contribution from young people alongside other stakeholders wit...

    Nicola Evans, Ben Hannigan, Steven Pryjmachuk, Elizabeth Gillen, Deborah Edwards, Mirella Longo, Gemma Trainor and Felicity Hathway

    Research Involvement and Engagement 2017 3:16

    Published on: 1 September 2017

  7. Methodology

    GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

    While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what...

    S. Staniszewska, J. Brett, I. Simera, K. Seers, C. Mockford, S. Goodlad, D. G. Altman, D. Moher, R. Barber, S. Denegri, A. Entwistle, P. Littlejohns, C. Morris, R. Suleman, V. Thomas and C. Tysall

    Research Involvement and Engagement 2017 3:13

    Published on: 2 August 2017

  8. Research article

    Tea, talk and technology: patient and public involvement to improve connected health ‘wearables’ research in dementia

    There are a growing number of mobile phones, watches and electronic devices which can be worn on the body to track aspects of health and well-being, such as daily steps, sleep and exercise. Dementia researcher...

    Lamiece Hassan, Caroline Swarbrick, Caroline Sanders, Angela Parker, Matt Machin, Mary P. Tully and John Ainsworth

    Research Involvement and Engagement 2017 3:12

    Published on: 1 August 2017

  9. Research article

    Involving seldom-heard groups in a PPI process to inform the design of a proposed trial on the use of probiotics to prevent preterm birth: a case study

    When designing clinical trials it is important to involve members of the public, who can provide a view on what may encourage or prevent people participating and on what matters to them. This is known as Publi...

    Juliet Rayment, Rosemary Lanlehin, Christine McCourt and Shahid M. Husain

    Research Involvement and Engagement 2017 3:11

    Published on: 25 May 2017

  10. Research article

    The consultation of rugby players in co-developing a player health study: feasibility and consequences of sports participants as research partners

    Many funding bodies within the United Kingdom and globally have encouraged public involvement in research. The Department of Health has also called public involvement a sign of good research. Despite the wide...

    Madeleine A.M. Davies, Edward Balai, Jo Adams, John-Henry Carter, Andrew Judge, Julia L. Newton and Nigel K. Arden

    Research Involvement and Engagement 2017 3:8

    Published on: 4 May 2017

  11. Research article

    Working with public contributors to improve the patient experience at the Manchester Clinical Research Facility: an evaluation of the Experience Based Design approach

    The Experience Based Design (EBD) approach involves patients, staff and members of the public working together to improve a service. This paper evaluates the methods that are used to involve patients and membe...

    Kerin Bayliss, Rebecca Prince, Hal Dewhurst, Suzanne Parsons, Leah Holmes and Paul Brown

    Research Involvement and Engagement 2017 3:10

    Published on: 26 April 2017

  12. Protocol

    Stakeholder involvement in systematic reviews: a protocol for a systematic review of methods, outcomes and effects

    Researchers are expected to actively involve stakeholders (including patients, the public, health professionals, and others) in their research. Although researchers increasingly recognise that this is good pra...

    Alex Pollock, Pauline Campbell, Caroline Struthers, Anneliese Synnot, Jack Nunn, Sophie Hill, Heather Goodare, Chris Watts and Richard Morley

    Research Involvement and Engagement 2017 3:9

    Published on: 21 April 2017

  13. Research article

    Co-producing public involvement training with members of the public and research organisations in the East Midlands: creating, delivering and evaluating the lay assessor training programme

    Members of the public share their views with researchers to improve health and social care research. Lay assessing is one way of doing this. This is where people, drawing upon personal and general life experie...

    Adele Horobin, George Brown, Fred Higton, Stevie Vanhegan, Andrew Wragg, Paula Wray and Dawn-Marie Walker

    Research Involvement and Engagement 2017 3:7

    Published on: 5 April 2017

  14. Commentary

    Hitting the spot”: Developing individuals with lived-experience of health and social care as facilitators to deliver a course to enhance public involvement in research – a Welsh perspective

    Public involvement in research has become an important and integral part of the research process in health and social care, from the early stages of research prioritisation and development to the later stages ...

    Alan Meudell, Sian Jones, Natalie Simon, Zoe Hunter, Barbara Moore, Jim Elliott and Dawn Casey

    Research Involvement and Engagement 2017 3:5

    Published on: 4 April 2017

  15. Commentary

    A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards

    Researchers who conduct studies in health and social care are encouraged to involve the public as early as possible in the process of designing their studies. Before their studies are allowed to start research...

    Raksha Pandya-Wood, Duncan S. Barron and Jim Elliott

    Research Involvement and Engagement 2017 3:6

    Published on: 4 April 2017

  16. Research article

    Priority setting in research: user led mental health research

    Involving people in health research is increasingly recognised as being important to make sure that research is focused more on the needs of people who use health services. At present, ideas about what should ...

    Marjorie Ghisoni, Christine Ann Wilson, Karen Morgan, Bethan Edwards, Natalie Simon, Emma Langley, Helen Rees, Amanda Wells, Philip John Tyson, Phil Thomas, Allen Meudell, Frank Kitt, Brian Mitchell, Alan Bowen and Jason Celia

    Research Involvement and Engagement 2017 3:4

    Published on: 1 February 2017

  17. Commentary

    Strengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group – Commentary

    Health Technology Assessment (HTA) is an evidence-based decision-making process, focusing on evaluating health technologies for funding within a healthcare system. ‘Health technologies’ include medications, me...

    Janet L. Wale, Anna Mae Scott, Neil Bertelsen and Nick Meade

    Research Involvement and Engagement 2017 3:3

    Published on: 10 January 2017

  18. Research article

    Learning to work together – lessons from a reflective analysis of a research project on public involvement

    Patient and public involvement (PPI) in research is very important, and funders and the NHS all expect this to happen. What this means in practice, and how to make it really successful, is therefore an importa...

    A. Howe, E. Mathie, D. Munday, M. Cowe, C. Goodman, J. Keenan, S. Kendall, F. Poland, S. Staniszewska and P. Wilson

    Research Involvement and Engagement 2017 3:1

    Published on: 9 January 2017

  19. Research article

    A systematic scoping review of the evidence for consumer involvement in organisations undertaking systematic reviews: focus on Cochrane

    Cochrane is the largest international producer of systematic reviews of clinical trial evidence. We looked for published evidence that reports where consumers (patients and the public) have been involved in Co...

    Richard F Morley, Gill Norman, Su Golder and Polly Griffith

    Research Involvement and Engagement 2016 2:36

    Published on: 21 December 2016

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