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  1. Content type: Methodology

    This paper reports on the use of a Community-Engaged Research (CEnR) approach to develop a new research tool to involve members of the community in thinking about priorities for early child health and developm...

    Authors: Emma Lowrie and Rachel Tyrrell-Smith

    Citation: Research Involvement and Engagement 2017 3:29

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  2. Content type: Protocol

    Parents of children with physical disabilities do a lot to support their child in daily life. In doing this they are faced with many challenges. These parents have a wide range of unmet needs, especially for i...

    Authors: M. W. Alsem, K. M. van Meeteren, M. Verhoef, M. J. W. M. Schmitz, M. J. Jongmans, J. M. A. Meily-Visser and M. Ketelaar

    Citation: Research Involvement and Engagement 2017 3:26

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  3. Content type: Research article

    It is important for health care workers to know the needs and expectations of their patients. Therefore, service users have to be involved in research. To achieve a meaningful dialogue between service users, h...

    Authors: T. de Brún, M. O’Reilly - de Brún, E. Van Weel-Baumgarten, N. Burns, C. Dowrick, C. Lionis, C. O’Donnell, F. S. Mair, M. Papadakaki, A. Saridaki, W. Spiegel, C. Van Weel, M. Van den Muijsenbergh and A. MacFarlane

    Citation: Research Involvement and Engagement 2017 3:28

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  4. Content type: Methodology

    Many young adults with type 1 diabetes struggle with the day-to-day management of their condition. They often find it difficult to find the time to attend their clinic appointments and to meet with their diabe...

    Authors: M. C. O’Hara, L. Hynes, M. O’Donnell, C. Keighron, G. Allen, A. Caulfield, C. Duffy, M. Long, M. Mallon, M. Mullins, G. Tonra, M. Byrne and S. F. Dinneen

    Citation: Research Involvement and Engagement 2017 3:25

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  5. Content type: Meeting Abstracts

    Authors: Delia Muir, Lidewij Eva Vat, Malori Keller, Tim Bell, Clara R. Jørgensen, Nanna B. Eskildsen, Anna T. Johnsen, Raksha Pandya-Wood, Steven Blackburn, Ruth Day, Carol Ingram, Julie Hapeshi, Samaira Khan, Delia Muir, Wendy Baird, Sue H. Pavitt…

    Citation: Research Involvement and Engagement 2017 3(Suppl 1):27

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    This article is part of a Supplement: Volume 3 Supplement 1

    The Correction to this article has been published in Research Involvement and Engagement 2018 4:12

  6. Content type: Research article

    The UK’s National Institute for Health Research (NIHR) Health Protection Research Unit in Emergency Preparedness and Response was asked to undertake research on how to reduce the impact of complex national/int...

    Authors: Julii Suzanne Brainard, Enana Al Assaf, Judith Omasete, Steve Leach, Charlotte C. Hammer and Paul R. Hunter

    Citation: Research Involvement and Engagement 2017 3:23

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  7. Content type: Research article

    This study reports on the process of conducting participatory research by training peer researchers to conduct interviews and analyse data collected with parents of overweight children. The methodology was cho...

    Authors: Fiona Gillison, Geraldine Cooney, Valerie Woolhouse, Angie Davies, Fiona Dickens and Penny Marno

    Citation: Research Involvement and Engagement 2017 3:22

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  8. Content type: Research article

    Many young adults with type 1 diabetes (T1D) find it hard to control their blood glucose levels. With lots of things going on in their lives, their diabetes is often not the most important thing to them. That ...

    Authors: Mary Clare O’Hara, Áine Cunningham, Cameron Keighron, Gary Allen, Antony Caulfield, Ciara Duffy, Michelle Long, Madeleine Mallon, Monica Mullins, Garret Tonra, Sarah Simkin, Lisa Hynes, Máire O’Donnell, Molly Byrne and Sean F Dinneen

    Citation: Research Involvement and Engagement 2017 3:21

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  9. Content type: Research article

    There is a need for the authors of research reports to be able to communicate their work clearly and effectively to readers who are not familiar with the research area. The National Institute for Health Resear...

    Authors: Emma Kirkpatrick, Wendy Gaisford, Elaine Williams, Elizabeth Brindley, Doreen Tembo and David Wright

    Citation: Research Involvement and Engagement 2017 3:17

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    The Correction to this article has been published in Research Involvement and Engagement 2017 3:32

  10. Content type: Research article

    The 2011 standards for trustworthy development of healthcare guidelines published by the United States-based Institute of Medicine recommend that guideline developers involve patients and public representative...

    Authors: Melissa J. Armstrong and Joshua A. Bloom

    Citation: Research Involvement and Engagement 2017 3:19

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  11. Content type: Commentary

    The impacts of involvement in research are often described in terms of the difference made to the research, the people involved and less frequently the researchers. This paper focuses on the researchers’ exper...

    Authors: Kristina Staley, Isabelle Abbey-Vital and Claire Nolan

    Citation: Research Involvement and Engagement 2017 3:20

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  12. Content type: Commentary

    Patients with rare diseases often help to develop new treatments for their conditions. But once developed, those treatments are sometimes priced too high for many patients to access them. We became aware that ...

    Authors: Koichi Mikami and Steve Sturdy

    Citation: Research Involvement and Engagement 2017 3:14

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  13. Content type: Research article

    We conducted a review of research on the topic of ‘risk’ in hospital based mental health care for young people aged 11-18. We wanted to include a contribution from young people alongside other stakeholders wit...

    Authors: Nicola Evans, Ben Hannigan, Steven Pryjmachuk, Elizabeth Gillen, Deborah Edwards, Mirella Longo, Gemma Trainor and Felicity Hathway

    Citation: Research Involvement and Engagement 2017 3:16

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  14. Content type: Methodology

    While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what...

    Authors: S. Staniszewska, J. Brett, I. Simera, K. Seers, C. Mockford, S. Goodlad, D. G. Altman, D. Moher, R. Barber, S. Denegri, A. Entwistle, P. Littlejohns, C. Morris, R. Suleman, V. Thomas and C. Tysall

    Citation: Research Involvement and Engagement 2017 3:13

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  15. Content type: Research article

    There are a growing number of mobile phones, watches and electronic devices which can be worn on the body to track aspects of health and well-being, such as daily steps, sleep and exercise. Dementia researcher...

    Authors: Lamiece Hassan, Caroline Swarbrick, Caroline Sanders, Angela Parker, Matt Machin, Mary P. Tully and John Ainsworth

    Citation: Research Involvement and Engagement 2017 3:12

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  16. Content type: Research article

    When designing clinical trials it is important to involve members of the public, who can provide a view on what may encourage or prevent people participating and on what matters to them. This is known as Publi...

    Authors: Juliet Rayment, Rosemary Lanlehin, Christine McCourt and Shahid M. Husain

    Citation: Research Involvement and Engagement 2017 3:11

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  17. Content type: Research article

    Many funding bodies within the United Kingdom and globally have encouraged public involvement in research. The Department of Health has also called public involvement a sign of good research. Despite the wide...

    Authors: Madeleine A.M. Davies, Edward Balai, Jo Adams, John-Henry Carter, Andrew Judge, Julia L. Newton and Nigel K. Arden

    Citation: Research Involvement and Engagement 2017 3:8

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  18. Content type: Research article

    The Experience Based Design (EBD) approach involves patients, staff and members of the public working together to improve a service. This paper evaluates the methods that are used to involve patients and membe...

    Authors: Kerin Bayliss, Rebecca Prince, Hal Dewhurst, Suzanne Parsons, Leah Holmes and Paul Brown

    Citation: Research Involvement and Engagement 2017 3:10

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  19. Content type: Protocol

    Researchers are expected to actively involve stakeholders (including patients, the public, health professionals, and others) in their research. Although researchers increasingly recognise that this is good pra...

    Authors: Alex Pollock, Pauline Campbell, Caroline Struthers, Anneliese Synnot, Jack Nunn, Sophie Hill, Heather Goodare, Chris Watts and Richard Morley

    Citation: Research Involvement and Engagement 2017 3:9

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  20. Content type: Research article

    Members of the public share their views with researchers to improve health and social care research. Lay assessing is one way of doing this. This is where people, drawing upon personal and general life experie...

    Authors: Adele Horobin, George Brown, Fred Higton, Stevie Vanhegan, Andrew Wragg, Paula Wray and Dawn-Marie Walker

    Citation: Research Involvement and Engagement 2017 3:7

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  21. Content type: Commentary

    Public involvement in research has become an important and integral part of the research process in health and social care, from the early stages of research prioritisation and development to the later stages ...

    Authors: Alan Meudell, Sian Jones, Natalie Simon, Zoe Hunter, Barbara Moore, Jim Elliott and Dawn Casey

    Citation: Research Involvement and Engagement 2017 3:5

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  22. Content type: Commentary

    Researchers who conduct studies in health and social care are encouraged to involve the public as early as possible in the process of designing their studies. Before their studies are allowed to start research...

    Authors: Raksha Pandya-Wood, Duncan S. Barron and Jim Elliott

    Citation: Research Involvement and Engagement 2017 3:6

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  23. Content type: Research article

    Involving people in health research is increasingly recognised as being important to make sure that research is focused more on the needs of people who use health services. At present, ideas about what should ...

    Authors: Marjorie Ghisoni, Christine Ann Wilson, Karen Morgan, Bethan Edwards, Natalie Simon, Emma Langley, Helen Rees, Amanda Wells, Philip John Tyson, Phil Thomas, Allen Meudell, Frank Kitt, Brian Mitchell, Alan Bowen and Jason Celia

    Citation: Research Involvement and Engagement 2017 3:4

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  24. Content type: Commentary

    Health Technology Assessment (HTA) is an evidence-based decision-making process, focusing on evaluating health technologies for funding within a healthcare system. ‘Health technologies’ include medications, me...

    Authors: Janet L. Wale, Anna Mae Scott, Neil Bertelsen and Nick Meade

    Citation: Research Involvement and Engagement 2017 3:3

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  25. Content type: Research article

    Patient and public involvement (PPI) in research is very important, and funders and the NHS all expect this to happen. What this means in practice, and how to make it really successful, is therefore an importa...

    Authors: A. Howe, E. Mathie, D. Munday, M. Cowe, C. Goodman, J. Keenan, S. Kendall, F. Poland, S. Staniszewska and P. Wilson

    Citation: Research Involvement and Engagement 2017 3:1

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  26. Content type: Research article

    Cochrane is the largest international producer of systematic reviews of clinical trial evidence. We looked for published evidence that reports where consumers (patients and the public) have been involved in Co...

    Authors: Richard F Morley, Gill Norman, Su Golder and Polly Griffith

    Citation: Research Involvement and Engagement 2016 2:36

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  27. Content type: Research article

    Ultrasound examinations during pregnancy have led to an increased number of detected heart defects in fetuses. Pregnant women and their partners are often unprepared for these news, and experience several diff...

    Authors: Tommy Carlsson, Ulla Melander Marttala, Barbro Wadensten, Gunnar Bergman and Elisabet Mattsson

    Citation: Research Involvement and Engagement 2016 2:35

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  28. Content type: Research article

    Certain patient groups are reluctant to engage with clinical research and consequently findings are not always truly representative of the wider population. With the emphasis on evidence-based clinical practic...

    Authors: Stephanie Estcourt, Jill Epton, Tom Epton, Bijay Vaidya and Mark Daly

    Citation: Research Involvement and Engagement 2016 2:34

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  29. Content type: Research article

    PLM is an online platform that provides tools for individuals to track their health and connect with other patients and while PLM has invited patients to participate in various research projects throughout the...

    Authors: Meaghan Bradley, Julia Braverman, Magdalena Harrington and Paul Wicks

    Citation: Research Involvement and Engagement 2016 2:33

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  30. Content type: Review article

    Paediatric Intensive Care (PIC) provides care to extremely ill children. Research in this area can be difficult because children are often too sick to discuss being involved in a study and parents are too upse...

    Authors: J. C. Menzies, K. P. Morris, H. P. Duncan and J. F. Marriott

    Citation: Research Involvement and Engagement 2016 2:32

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  31. Content type: Methodology

    The aim of this project was to find out the priorities for research that could improve fundamental care. ‘Fundamental care’ covers all aspects of basic care in hospital wards, such as helping with core physica...

    Authors: Jane Ball, Claire Ballinger, Anya De Iongh, Chiara Dall’Ora, Sally Crowe and Peter Griffiths

    Citation: Research Involvement and Engagement 2016 2:31

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  32. Content type: Research article

    Food allergy is a serious public health problem in Canada and other high-income countries, as it is potentially life threatening and severely impacts the quality of life for individuals and their families. Yet...

    Authors: Jenna Dixon, Susan J. Elliott and Ann E. Clarke

    Citation: Research Involvement and Engagement 2016 2:27

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  33. Content type: Methodology

    There are well documented benefits to involving patients and the public in research. However, there is little research published about their involvement in large complex studies such as cohort multiple Randomi...

    Authors: Anne Heaven, Lesley Brown, Marilyn Foster and Andrew Clegg

    Citation: Research Involvement and Engagement 2016 2:30

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  34. Content type: Research article

    There is a consensus that patients and the public should be involved in research in a meaningful way. However, to date, lay people have been mostly involved in developing research ideas and commenting on patie...

    Authors: S. Garfield, S. Jheeta, F. Husson, A. Jacklin, A. Bischler, C. Norton and B. D. Franklin

    Citation: Research Involvement and Engagement 2016 2:29

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  35. Content type: Research article

    For the elderly to get the care and services they need, they may need to make the difficult decision about staying in their home or moving to another home. Many other people may be involved in their care too (...

    Authors: Mirjam M. Garvelink, Julie Emond, Matthew Menear, Nathalie Brière, Adriana Freitas, Laura Boland, Maria Margarita Becerra Perez, Louisa Blair, Dawn Stacey and France Légaré

    Citation: Research Involvement and Engagement 2016 2:26

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  36. Content type: Commentary

    This commentary article describes three interactive workshops that explored how patients can contribute to decisions about what outcomes are measured in clinical trials across the world. Outcomes like quality ...

    Authors: Bridget Young and Heather Bagley

    Citation: Research Involvement and Engagement 2016 2:25

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  37. Content type: Research article

    The article analyses the process of securing permissions for members of the public (we refer to them as “research partners”) and academics involved in a qualitative study of public involvement in research (PIR...

    Authors: Vito Laterza, David Evans, Rosemary Davies, Christine Donald and Cathy Rice

    Citation: Research Involvement and Engagement 2016 2:24

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  38. Content type: Review article

    The paper discusses engaging older adults living with frailty and their family caregivers. Frailty is a state that puts an individual at a higher risk for poor health outcomes and death. Understanding whether a p...

    Authors: Jayna Holroyd-Leduc, Joyce Resin, Lisa Ashley, Doris Barwich, Jacobi Elliott, Paul Huras, France Légaré, Megan Mahoney, Alies Maybee, Heather McNeil, Daryl Pullman, Richard Sawatzky, Paul Stolee and John Muscedere

    Citation: Research Involvement and Engagement 2016 2:23

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  39. Content type: Protocol

    Involving young people in research about their health is increasingly recognized as being important to make sure that research is focused more on the needs of young people. However, at present, ideas about wha...

    Authors: Suzanne Parsons, Kate Dack, Bella Starling, Wendy Thomson and Janet E. McDonagh

    Citation: Research Involvement and Engagement 2016 2:22

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  40. Content type: Research article

    In Canada, the CADTH Common Drug Review helps ensure that scarce health care resources are used to fund the most effective drugs. Clinicians, researchers, payers, and patients all have important, but potential...

    Authors: Sarah Berglas, Lauren Jutai, Gail MacKean and Laura Weeks

    Citation: Research Involvement and Engagement 2016 2:21

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  41. Content type: Protocol

    The PROMPT study is a community-based research project designed to understand the factors which affect smoking as well as ways to manage, reduce and quit smoking among people who use drugs in Ottawa. There is ...

    Authors: Smita Pakhale, Tina Kaur, Kelly Florence, Tiffany Rose, Robert Boyd, Joanne Haddad, Donna Pettey, Wendy Muckle and Mark Tyndall

    Citation: Research Involvement and Engagement 2016 2:20

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  42. Content type: Research article

    Patient safety is a growing research area. However, although patients and the public are increasingly involved in clinical research, there is little guidance on how best to involve patients in patient safety r...

    Authors: Dominic Furniss, Ioanna Iacovides, Imogen Lyons, Ann Blandford and Bryony Dean Franklin

    Citation: Research Involvement and Engagement 2016 2:19

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  43. Content type: Research article

    Patients and researchers must work together to improve the relevance and quality of research. Qualitative systematic reviews synthesise findings from a range of published qualitative studies to identify common...

    Authors: Kerin Bayliss, Bella Starling, Karim Raza, Eva C. Johansson, Codruta Zabalan, Susan Moore, Diana Skingle, Tiina Jasinski, Susan Thomas and Rebecca Stack

    Citation: Research Involvement and Engagement 2016 2:18

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Patients Included

2017 Journal Metrics

  • Speed
    102 days to first decision for reviewed manuscripts only
    83 days to first decision for all manuscripts
    164 days from submission to acceptance
    19 days from acceptance to publication

    Usage 
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    1,608 Altmetric mentions

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