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  1. Content type: Research article

    Including patient and public involvement (PPI) in health research is thought to improve research but it is hard to be clear exactly how it helps. This is because PPI takes many forms, is sometimes only token a...

    Authors: Cindy Mann, Simon Chilcott, Katrina Plumb, Edmund Brooks and Mei-See Man

    Citation: Research Involvement and Engagement 2018 4:15

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  2. Content type: Research article

    Patient and public involvement (PPI) is increasingly recognised as important in research. Most PPI takes place face-to-face, but this can be difficult for people who are unwell or have caring responsibilities....

    Authors: Lisa Jane Brighton, Sophie Pask, Hamid Benalia, Sylvia Bailey, Marion Sumerfield, Jana Witt, Susanne de Wolf-Linder, Simon Noah Etkind, Fliss E. M. Murtagh, Jonathan Koffman and Catherine J. Evans

    Citation: Research Involvement and Engagement 2018 4:14

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  3. Content type: Research article

    In recent years, the importance of involving patients in research has been increasingly recognized because it increases the relevance and quality of research, facilitates recruitment, enhances public trust and...

    Authors: Julie Allard, Fabián Ballesteros, Samantha J. Anthony, Vincent Dumez, David Hartell, Greg Knoll, Linda Wright and Marie-Chantal Fortin

    Citation: Research Involvement and Engagement 2018 4:13

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  4. Content type: Commentary

    Public involvement can impact on research, on the public who give advice, on the researchers and the research participants. Evaluating impact is an important part of the research process. Two members of a hosp...

    Authors: Jim Gordon, Sue Franklin and Sabrina A. Eltringham

    Citation: Research Involvement and Engagement 2018 4:11

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  5. Content type: Commentary

    The involvement of patients in health research has resulted in the development of more effective interventions and policies in healthcare that respond to the needs of healthcare users. This article examines ho...

    Authors: Roberta L. Woodgate, Melanie Zurba and Pauline Tennent

    Citation: Research Involvement and Engagement 2018 4:9

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  6. Content type: Methodology

    Outcome domains are aspects of a condition that matter to patients and clinicians and can be measured to assess treatment effects. For tinnitus, examples include ‘tinnitus loudness’ and ‘ability to concentrate...

    Authors: Harriet Smith, Adele Horobin, Kathryn Fackrell, Veronica Colley, Brian Thacker and Deborah A. Hall

    Citation: Research Involvement and Engagement 2018 4:8

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  7. Content type: Protocol

    Tailoring and testing a peer support decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: A study protocol.

    Authors: Janet Jull, Maegan Mazereeuw, Amanada Sheppard, Alethea Kewayosh, Richard Steiner and Ian D. Graham

    Citation: Research Involvement and Engagement 2018 4:6

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  8. Content type: Commentary

    Patient involvement in research is about adding value rather than commenting on technical quality. After 15 years as an involved patient in cancer research I started looking around and I found I was asking mys...

    Authors: Roger Wilson

    Citation: Research Involvement and Engagement 2018 4:7

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    The Letter to this article has been published in Research Involvement and Engagement 2018 4:25

  9. Content type: Correction

    After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.

    Authors: Elspeth Mathie, Helena Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Jean Simpson, Nat Barden, Penny Vicary, Amander Wellings, Fiona Poland and Julia Jones

    Citation: Research Involvement and Engagement 2018 4:12

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    The original article was published in Research Involvement and Engagement 2017 3:27

  10. Content type: Review article

    As much as 85 % of health research is believed to be wasted because it is not published or reported, the design is poor or does not consider what is already known in the topic area. Although a great deal of wo...

    Authors: Virginia Minogue, Mary Cooke, Anne-Laure Donskoy, Penny Vicary and Bill Wells

    Citation: Research Involvement and Engagement 2018 4:5

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  11. Content type: Methodology

    The purpose of this paper is to describe a patient engagement event designed to create an educational workbook with smokers who drink alcohol at harmful levels. The goal was to create a workbook that combined ...

    Authors: Nadia Minian, Aliya Noormohamed, Laurie Zawertailo, Dolly Baliunas, Norman Giesbrecht, Bernard Le Foll, Jürgen Rehm, Andriy Samokhvalov and Peter L. Selby

    Citation: Research Involvement and Engagement 2018 4:4

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  12. Content type: Methodology

    In 2015 a microbiology team in Bristol joined a European research project that aims to develop new antibiotics to fight drug resistant infections. The microbiology team were convinced of the benefits of patien...

    Authors: Sally Grier, David Evans, Andy Gibson, Teh Li Chin, Margaret Stoddart, Michele Kok, Richard Campbell, Val Kenny and Alasdair MacGowan

    Citation: Research Involvement and Engagement 2018 4:3

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  13. Content type: Research article

    There are currently 15 million Americans who provide over 80% of the care required by their family members with Alzheimer’s disease and other dementias. Yet care for caregivers continues to be fragmented and f...

    Authors: Carole L. White, Kristen J. Overbaugh, Carolyn E. Z. Pickering, Bridgett Piernik-Yoder, Debbie James, Darpan I. Patel, Frank Puga, Lark Ford and James Cleveland

    Citation: Research Involvement and Engagement 2018 4:1

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  14. Content type: Review article

    If people can read, understand and act on health information to better their health and reduce illness, they are thought to have “adequate” health literacy. Poor health literacy can mean people are less able t...

    Authors: Stephanie Howard Wilsher, Julii Brainard, Yoon Loke and Charlotte Salter

    Citation: Research Involvement and Engagement 2017 3:31

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  15. Content type: Correction

    After publication of our article [1] it has come to our attention that Fig. 3 was accidentally omitted. In the section “Ease of reading”, the sentence “FRE scores were recorded for the original, author-revised...

    Authors: Emma Kirkpatrick, Wendy Gaisford, Elaine Williams, Elizabeth Brindley, Doreen Tembo and David Wright

    Citation: Research Involvement and Engagement 2017 3:32

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    The original article was published in Research Involvement and Engagement 2017 3:17

  16. Content type: Methodology

    This paper reports on the use of a Community-Engaged Research (CEnR) approach to develop a new research tool to involve members of the community in thinking about priorities for early child health and developm...

    Authors: Emma Lowrie and Rachel Tyrrell-Smith

    Citation: Research Involvement and Engagement 2017 3:29

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  17. Content type: Protocol

    Parents of children with physical disabilities do a lot to support their child in daily life. In doing this they are faced with many challenges. These parents have a wide range of unmet needs, especially for i...

    Authors: M. W. Alsem, K. M. van Meeteren, M. Verhoef, M. J. W. M. Schmitz, M. J. Jongmans, J. M. A. Meily-Visser and M. Ketelaar

    Citation: Research Involvement and Engagement 2017 3:26

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  18. Content type: Research article

    It is important for health care workers to know the needs and expectations of their patients. Therefore, service users have to be involved in research. To achieve a meaningful dialogue between service users, h...

    Authors: T. de Brún, M. O’Reilly - de Brún, E. Van Weel-Baumgarten, N. Burns, C. Dowrick, C. Lionis, C. O’Donnell, F. S. Mair, M. Papadakaki, A. Saridaki, W. Spiegel, C. Van Weel, M. Van den Muijsenbergh and A. MacFarlane

    Citation: Research Involvement and Engagement 2017 3:28

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  19. Content type: Methodology

    Many young adults with type 1 diabetes struggle with the day-to-day management of their condition. They often find it difficult to find the time to attend their clinic appointments and to meet with their diabe...

    Authors: M. C. O’Hara, L. Hynes, M. O’Donnell, C. Keighron, G. Allen, A. Caulfield, C. Duffy, M. Long, M. Mallon, M. Mullins, G. Tonra, M. Byrne and S. F. Dinneen

    Citation: Research Involvement and Engagement 2017 3:25

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  20. Content type: Meeting Abstracts

    Authors: Delia Muir, Lidewij Eva Vat, Malori Keller, Tim Bell, Clara R. Jørgensen, Nanna B. Eskildsen, Anna T. Johnsen, Raksha Pandya-Wood, Steven Blackburn, Ruth Day, Carol Ingram, Julie Hapeshi, Samaira Khan, Delia Muir, Wendy Baird, Sue H. Pavitt…

    Citation: Research Involvement and Engagement 2017 3(Suppl 1):27

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    This article is part of a Supplement: Volume 3 Supplement 1

    The Correction to this article has been published in Research Involvement and Engagement 2018 4:12

  21. Content type: Research article

    The UK’s National Institute for Health Research (NIHR) Health Protection Research Unit in Emergency Preparedness and Response was asked to undertake research on how to reduce the impact of complex national/int...

    Authors: Julii Suzanne Brainard, Enana Al Assaf, Judith Omasete, Steve Leach, Charlotte C. Hammer and Paul R. Hunter

    Citation: Research Involvement and Engagement 2017 3:23

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  22. Content type: Research article

    This study reports on the process of conducting participatory research by training peer researchers to conduct interviews and analyse data collected with parents of overweight children. The methodology was cho...

    Authors: Fiona Gillison, Geraldine Cooney, Valerie Woolhouse, Angie Davies, Fiona Dickens and Penny Marno

    Citation: Research Involvement and Engagement 2017 3:22

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  23. Content type: Research article

    Many young adults with type 1 diabetes (T1D) find it hard to control their blood glucose levels. With lots of things going on in their lives, their diabetes is often not the most important thing to them. That ...

    Authors: Mary Clare O’Hara, Áine Cunningham, Cameron Keighron, Gary Allen, Antony Caulfield, Ciara Duffy, Michelle Long, Madeleine Mallon, Monica Mullins, Garret Tonra, Sarah Simkin, Lisa Hynes, Máire O’Donnell, Molly Byrne and Sean F Dinneen

    Citation: Research Involvement and Engagement 2017 3:21

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  24. Content type: Research article

    There is a need for the authors of research reports to be able to communicate their work clearly and effectively to readers who are not familiar with the research area. The National Institute for Health Resear...

    Authors: Emma Kirkpatrick, Wendy Gaisford, Elaine Williams, Elizabeth Brindley, Doreen Tembo and David Wright

    Citation: Research Involvement and Engagement 2017 3:17

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    The Correction to this article has been published in Research Involvement and Engagement 2017 3:32

  25. Content type: Research article

    The 2011 standards for trustworthy development of healthcare guidelines published by the United States-based Institute of Medicine recommend that guideline developers involve patients and public representative...

    Authors: Melissa J. Armstrong and Joshua A. Bloom

    Citation: Research Involvement and Engagement 2017 3:19

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  26. Content type: Commentary

    The impacts of involvement in research are often described in terms of the difference made to the research, the people involved and less frequently the researchers. This paper focuses on the researchers’ exper...

    Authors: Kristina Staley, Isabelle Abbey-Vital and Claire Nolan

    Citation: Research Involvement and Engagement 2017 3:20

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  27. Content type: Commentary

    Patients with rare diseases often help to develop new treatments for their conditions. But once developed, those treatments are sometimes priced too high for many patients to access them. We became aware that ...

    Authors: Koichi Mikami and Steve Sturdy

    Citation: Research Involvement and Engagement 2017 3:14

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  28. Content type: Research article

    We conducted a review of research on the topic of ‘risk’ in hospital based mental health care for young people aged 11-18. We wanted to include a contribution from young people alongside other stakeholders wit...

    Authors: Nicola Evans, Ben Hannigan, Steven Pryjmachuk, Elizabeth Gillen, Deborah Edwards, Mirella Longo, Gemma Trainor and Felicity Hathway

    Citation: Research Involvement and Engagement 2017 3:16

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  29. Content type: Methodology

    While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what...

    Authors: S. Staniszewska, J. Brett, I. Simera, K. Seers, C. Mockford, S. Goodlad, D. G. Altman, D. Moher, R. Barber, S. Denegri, A. Entwistle, P. Littlejohns, C. Morris, R. Suleman, V. Thomas and C. Tysall

    Citation: Research Involvement and Engagement 2017 3:13

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  30. Content type: Research article

    There are a growing number of mobile phones, watches and electronic devices which can be worn on the body to track aspects of health and well-being, such as daily steps, sleep and exercise. Dementia researcher...

    Authors: Lamiece Hassan, Caroline Swarbrick, Caroline Sanders, Angela Parker, Matt Machin, Mary P. Tully and John Ainsworth

    Citation: Research Involvement and Engagement 2017 3:12

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  31. Content type: Research article

    When designing clinical trials it is important to involve members of the public, who can provide a view on what may encourage or prevent people participating and on what matters to them. This is known as Publi...

    Authors: Juliet Rayment, Rosemary Lanlehin, Christine McCourt and Shahid M. Husain

    Citation: Research Involvement and Engagement 2017 3:11

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  32. Content type: Research article

    Many funding bodies within the United Kingdom and globally have encouraged public involvement in research. The Department of Health has also called public involvement a sign of good research. Despite the wide...

    Authors: Madeleine A.M. Davies, Edward Balai, Jo Adams, John-Henry Carter, Andrew Judge, Julia L. Newton and Nigel K. Arden

    Citation: Research Involvement and Engagement 2017 3:8

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  33. Content type: Research article

    The Experience Based Design (EBD) approach involves patients, staff and members of the public working together to improve a service. This paper evaluates the methods that are used to involve patients and membe...

    Authors: Kerin Bayliss, Rebecca Prince, Hal Dewhurst, Suzanne Parsons, Leah Holmes and Paul Brown

    Citation: Research Involvement and Engagement 2017 3:10

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  34. Content type: Protocol

    Researchers are expected to actively involve stakeholders (including patients, the public, health professionals, and others) in their research. Although researchers increasingly recognise that this is good pra...

    Authors: Alex Pollock, Pauline Campbell, Caroline Struthers, Anneliese Synnot, Jack Nunn, Sophie Hill, Heather Goodare, Chris Watts and Richard Morley

    Citation: Research Involvement and Engagement 2017 3:9

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  35. Content type: Research article

    Members of the public share their views with researchers to improve health and social care research. Lay assessing is one way of doing this. This is where people, drawing upon personal and general life experie...

    Authors: Adele Horobin, George Brown, Fred Higton, Stevie Vanhegan, Andrew Wragg, Paula Wray and Dawn-Marie Walker

    Citation: Research Involvement and Engagement 2017 3:7

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  36. Content type: Commentary

    Researchers who conduct studies in health and social care are encouraged to involve the public as early as possible in the process of designing their studies. Before their studies are allowed to start research...

    Authors: Raksha Pandya-Wood, Duncan S. Barron and Jim Elliott

    Citation: Research Involvement and Engagement 2017 3:6

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  37. Content type: Commentary

    Public involvement in research has become an important and integral part of the research process in health and social care, from the early stages of research prioritisation and development to the later stages ...

    Authors: Alan Meudell, Sian Jones, Natalie Simon, Zoe Hunter, Barbara Moore, Jim Elliott and Dawn Casey

    Citation: Research Involvement and Engagement 2017 3:5

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  38. Content type: Research article

    Involving people in health research is increasingly recognised as being important to make sure that research is focused more on the needs of people who use health services. At present, ideas about what should ...

    Authors: Marjorie Ghisoni, Christine Ann Wilson, Karen Morgan, Bethan Edwards, Natalie Simon, Emma Langley, Helen Rees, Amanda Wells, Philip John Tyson, Phil Thomas, Allen Meudell, Frank Kitt, Brian Mitchell, Alan Bowen and Jason Celia

    Citation: Research Involvement and Engagement 2017 3:4

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  39. Content type: Commentary

    Health Technology Assessment (HTA) is an evidence-based decision-making process, focusing on evaluating health technologies for funding within a healthcare system. ‘Health technologies’ include medications, me...

    Authors: Janet L. Wale, Anna Mae Scott, Neil Bertelsen and Nick Meade

    Citation: Research Involvement and Engagement 2017 3:3

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  40. Content type: Research article

    Patient and public involvement (PPI) in research is very important, and funders and the NHS all expect this to happen. What this means in practice, and how to make it really successful, is therefore an importa...

    Authors: A. Howe, E. Mathie, D. Munday, M. Cowe, C. Goodman, J. Keenan, S. Kendall, F. Poland, S. Staniszewska and P. Wilson

    Citation: Research Involvement and Engagement 2017 3:1

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  41. Content type: Research article

    Cochrane is the largest international producer of systematic reviews of clinical trial evidence. We looked for published evidence that reports where consumers (patients and the public) have been involved in Co...

    Authors: Richard F Morley, Gill Norman, Su Golder and Polly Griffith

    Citation: Research Involvement and Engagement 2016 2:36

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  42. Content type: Research article

    Ultrasound examinations during pregnancy have led to an increased number of detected heart defects in fetuses. Pregnant women and their partners are often unprepared for these news, and experience several diff...

    Authors: Tommy Carlsson, Ulla Melander Marttala, Barbro Wadensten, Gunnar Bergman and Elisabet Mattsson

    Citation: Research Involvement and Engagement 2016 2:35

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  43. Content type: Research article

    Certain patient groups are reluctant to engage with clinical research and consequently findings are not always truly representative of the wider population. With the emphasis on evidence-based clinical practic...

    Authors: Stephanie Estcourt, Jill Epton, Tom Epton, Bijay Vaidya and Mark Daly

    Citation: Research Involvement and Engagement 2016 2:34

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